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Thread: Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

  1. #691

    I somehow mised this one ...

    Friday, September 09, 2005 at 08:46 PM EDT

    Sam continues to do well;
    I'm really going to try to get new pics up soon!

    Her kidney labs continue to be stable, so we won't go back down to Children's for 2 weeks, when we'll see the kidney docs again, as well as the plastic surgeon. If she continues to not need dialysis at this time, they'll remove the catheter early next month, when she also has a scope scheduled by ENT to have a final look at the trach site, to make sure everything healed well. (That way, she's only under anesthesia once; they try to double up on necessary procedures when they can, so as to avoid multiple surgeries.)

    We're hoping her PICC line can come out in the next month or so, too, and then we'll just have that pesky feeding tube. She's lost a little weight since they cut the feeds down to 12 hours; she's eating a little more, but not near enough. They're not overly concerned, as she's still a healthy weight -- those of you that have seen her can vouch for that!! -- but of course, we don't want her to continue losing. They've suggested a shake, kind of like Ensure, but low protein, for her kidneys, but we're having trouble tracking down the one they suggested -- our pharmacist couldn't find it in the computer, so they'll have to give us another name. We can also up the feeds again, but it would be great to have her take something by mouth. She drinks a lot of water, but, alas, no calories in that. A lot of liquids she would drink -- OJ, milk -- she can't have, due to her kidney diet. So the eating thing is still a challenge, but each day she's more willing to try a little something, so we'll keep plugging away!

    She continues to laugh and dance a lot, and loves to sing along with her new favorite -- Bear in the Big Blue House. Yes, the Australian guys finally have some serious competition. She's also counting a lot, and is pretty good at 1-5, and is learning some colors, too; she amazes us every day! She visited the library this week, and her friends at Precious Resources, too; it's nice for her to see people other than Mom & Dad, though Dad will be quick to tell you he's the fun one! Mom makes her do her stretches, and she hates it, but they must be done. We meet w/a rehab doc next month, at Children's, who specializes in limb deficiencies; we're hoping to begin early prosthetics training sometime this fall.

    Sam's sleeping away right now, gearing up for the weekend;
    hope everyone has a nice one!



    Good to hear Sammy continues to Make Progress!!


  2. #692
    Join Date
    Apr 2002
    Thank you Phred, I missed hearing from Sammy.

    I am so glad she loves colours and the libraries. In my life, books is the number 1 thing to get me through bad times and you can't start early enough to learn what a world of wonders they contain.

  3. #693
    Join Date
    May 2005
    Bexhill, UK
    So glad to hear Sammy is still improving
    Give 1 for a poundie

  4. #694

    Sammy had a *bug* ...

    Friday, September 16, 2005 at 08:42 PM EDT

    Sam had a little virus this week, causing coughing and vomiting;
    we ended up taking her down to Children's ER Monday night,
    as I was afraid she might be getting dehydrated.
    They ran a bunch of tests -- but everything came back okay -- and
    gave her fluids for a couple hours, and she's been doing better since.

    She saw her ped yesterday, and that went fine.
    We'll go back to Children's a week from today, and
    check in w/the kidney docs and w/plastics.

    She continues to be her cute little self,
    and it seems like she's learning more every day.
    We were able to get out and about later in the week, to pick up more books and movies from the library--she's into Barney, now, too--and visit her friends at Precious Resources.

    We're hoping to enjoy nice weather this weekend, and
    then I return to work Monday,
    so that will be another transition for us.

    Thanks for keeping Sam in your thoughts.


    Glad the *bug* went away ...
    Here's Hoping for a Sunny Weekend!

    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  5. #695
    Awww. Sorry to hear you had a virus little Sammy! Hopefully you are feeling good now, and having a wonderful weekend!

  6. #696
    Hey "Auntie" Johanna ~

    Didn't SOMEbody take some *snappies* at the Sammy Benefit?

    Any chance you could find a few and POST em??

    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  7. #697

    Sammy's *ON the MOVE*!

    Tuesday, September 20, 2005 at 09:17 AM EDT

    Just a brief update -- for the first time, Sam crawled last night.

    Up to this point, she hasn't shown much interest or willingness to move independently. I've tried to get her to "scoot" with me, but she just would get upset. Last night, she was sitting on the couch with Dad, and throwing a little rubber ball to me on the floor, which I would then toss back to her.

    I started tossing it to the other end of the couch, to see how much reaching she'd be willing to do, and when I threw it far enough that she couldn't lean over to get it,
    our girl started to move, and scooted herself right over to it!

    She showed some good upper body strength, and w/Mom and Dad clapping away, she seemed quite pleased with herself, and quite tired after repeating it a few more times.

    Watch out--Sam's on the move!

    /s/ Proud & Happy Mom




    *GO*, Sammy!!

    /s/ Cinder, Smokey & Heidi

    R.I.P. ~ Boots, Bowser, Sherman, & Snoopy

  8. #698
    Join Date
    May 2005
    Bexhill, UK
    Bless her little heart! Well done Sammy!!!
    Give 1 for a poundie

  9. #699
    Join Date
    Sep 2002
    Cincinnati, Ohio USA
    Hearing this for the FIRST time right here, right now!!!

    WAY TO GO, SAM! There is NO looking back now.

  10. #700
    Join Date
    Aug 2003
    Yeah, Samantha!!

  11. #701
    Join Date
    Nov 2000
    Never has the Last word.
    That's wonderful news!
    Keegan 9/28/2001 to June 9, 2012
    Kylie (June 2000 to 5/19/2012)
    "we as American's have forgotten we can agree to disagree"
    Kylie the Queen, Keegan the Princess, entertained by Kloe the court Jester
    Godspeed Phred and Gini you will be missed more than you ever know..

  12. #702
    YAY FOR SAMMY!!!!!!!

  13. #703
    Join Date
    Aug 2001
    WONDERFUL news!!

    Yay for Sammy!!!
    ...RIP, our sweet Gini...

  14. #704
    Join Date
    Apr 2002

    That's some really good news. Shows that she is ready to play and to move- the essence of being a kid (or a kit )

  15. #705
    Join Date
    Sep 2002
    That is such fantastic news.

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