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Thread: Fibromyaligia people.......

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  1. #1
    Quote Originally Posted by Catsnclay
    in the sample package I have, it DOES say to slowly reduce the medication and NOT to go off of it - cold turkey.
    I talked to my dr. about that and he said that, since he was out of town at that time, the medical asst. should've paged him. But he also said that given the short period of time that I was on it, it shouldn't have had that effect. Excuses, excuses, excuses.

    I didn't want to frighten you but I felt that you should know what I experienced. You may be one of the lucky ones who has no side effects from it but, if you do, just be smart and wean yourself off it.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

  2. #2
    Join Date
    Jun 2003
    Location
    Florida, USA
    Posts
    14,038
    Thanks for the warning, Mary. I will definitely wean off of it if necessary. I know a lady at my work that takes 60 mg. a day and she's changed for the better so much it's hard to believe. I need to warn her too.

    I feel so fortunate to be one of the lucky ones with it. It sure sounds like all people are not so lucky.


    I've been Boo'd...
    Thanks Barry!

  3. #3
    Join Date
    Mar 2003
    Location
    New Zealand
    Posts
    11,191
    It really is your personal choice, I have had fibromyalgia for over 11 years, i tried amitripilene and found it to be horrific, i was like a zombie, remember people with fibro are usually very sensitive to drugs, and the side effects, more so than people without it, i have never tried anything else since, and i don't think i intend to, i do take over the counter pain relief panadol, which i think is like your tynenol, it just takes the edge off the pain for me sometimes and i was taking arcoxia which is a drug for arthritis, but only like two tablets a month, i have since quit that, as my stomach problems just won't tolerate much.

    Good luck with whatever you decide, for me until they find a cure that does not require medication with awful side effects i am going to go on as i am now,i may end up suffering more i guess, but some of the side effects are just not worth it to me.
    Furangels only lent.
    RIP my gorgeous Sooti, taken from us far too young, we miss your beautiful face and purssonality,take care of Ash for us, love you xx000❤️❤️

    RIP my beautiful Ash,your pawprints are forever in my heart, love and miss you so much my big boy. ❤️❤️

    RIP my sweet gorgeous girl Ellie-Mae, a little battler to the end, you will never ever be forgotten, your little soul is forever in my heart, my thoughts, my memories, my love for you will never die, Love you my darling little precious girl.❤️❤️

    RIP our sweet Nikita taken suddenly ,way too soon ,you were a special girl we loved you so much ,miss you ❤️❤️

    RIP my beautiful Lexie, 15 years of unconditional love you gave us, we loved you so much, and miss you more than words can say.❤️❤️

    RIP beautiful Evee Ray Skye ,my life will never be the same with out you ,I loved you so much, I will never forget you ,miss you my darling .❤️❤️

  4. #4
    Quote Originally Posted by carole
    some of the side effects are just not worth it to me.
    Amen, sista! And, I, too, was on ametryptilene. No effect whatsoever except weight gain. But as you say, it's a personal choice. Others may see progress w/it but it's good to hear other's experiences w/it beforehand.

    I was also on Prednisone and in the beginning, it was a miracle drug. Totally pain free in 24 hours. It lasted two weeks. Went on it again, half as much pain that also lasted two weeks. Went on it one last time. NO effect whatsoever. So my dr. (I've since switched to someone else) wanted to put me on it for two years. I did my research and it makes your bones brittle and affects your balance, which it had already done. I have a terrible time w/my balance now. Plus you become moon faced and fat. Lovely. No effect PLUS I get to gain weight in the process. What a deal! Hopefully, someday someone will come up w/the solution of pain management for fibromyalgia patients. Until such time, though, I refuse to be a guinea pig.
    Last edited by Medusa; 12-23-2007 at 08:33 AM.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

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