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Thread: Scared for my son. Please help w/comments *Update 4/16*

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  1. #1
    Join Date
    Oct 2005
    Location
    Illinois, USA
    Posts
    28,394
    Quote Originally Posted by Medusa
    I know drs. become calloused due to working w/devastating illnesses but they need to realize that, when we're sick we're at our most scared and vulnerable. To say something like that to someone, especially someone as young and vital as my son and who has no one there w/him, is cruel. The other dr. told him last night "Well, we've ruled out Lou Gehrig's disease, multiple sclerosis, fibromyalgia, inclusion body myositis, polymyositis, etc. so I'd say that the ER dr. was right on when he said "acute" myositis." My son and I both breathed a sigh of relief. They want him to go to the Muscular Dystrophy clinic due to the great diagnosticians they have there and they treat/diagnose several muscle diseases, not just muscular dystrophy and their services are free. But he said he'd only go if he gets worse and, right now, he's improving.
    I can see both sides of this one. Viral myositis makes sense to me. But on the other hand, I can see a doc wanting to pursue it further since your son is young, healthy and it would make sense to make sure his symptoms were not part of a condition other than viral myositis. Also good to know he can go to the MD clinic if that should be necessary.

    Hug,
    Elyse
    Praying for peace in the Middle East, Ukraine, and around the world.

    I've been Boo'd ... right off the stage!

    Aaahh, I have been defrosted! Thank you, Bonny and Asiel!
    Brrrr, I've been Frosted! Thank you, Asiel and Pomtzu!


    "That's the power of kittens (and puppies too, of course): They can reduce us to quivering masses of Jell-O in about two seconds flat and make us like it. Good thing they don't have opposable thumbs or they'd surely have taken over the world by now." -- Paul Lukas

    "We consume our tomorrows fretting about our yesterdays." -- Persius, first century Roman poet

    Cassie's Catster page: http://www.catster.com/cats/448678

  2. #2
    Quote Originally Posted by cassiesmom
    I can see both sides of this one.
    It isn't that I don't understand why the dr. wants to do further testing. I just didn't like that she so flippantly blurted out what it could be. Until she knew for certain, she could've said "Let's just wait and see and not panic right now. We've got further testing to do." To put those words into his head (and mine) was terrifying and not easily erased.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

  3. #3

    *Update* 2/7

    I just spoke w/my son and he feels that he's at 40%. He can now open the door w/his left hand, although not as easily as w/his right. He said he could take the cap off his pen but when he was talking w/me, he tried and couldn't do it at first, then he managed to do it. He washed his hair for the first time in a week but he wasn't able to scrub it the way he likes to but so far all he had been able to do is let the water run over his head. He said washing dishes is tricky. He can't hold the dish w/his left hand, he has to put it in the sink and wash it w/his right. He goes back to the walk-in clinic tomorrow for more blood tests and the results. He won't relax until he hears good news, even though the neurologist ruled out ALS, MS and many other too scary diseases to even mention. But as I said earlier, those words stayed in my mind and I haven't been able to erase them or the fear that goes w/them since that dr. said it and I know my son hasn't been able to either. So. Will you all please continue and even bump up your prayers for my son, that all will go well tomorrow and that we'll have some more good news so that we can exhale? I'm so tense that I can't even go to the bathroom.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

  4. #4
    Join Date
    Jun 2000
    Location
    Windham, Vermont, USA
    Posts
    40,861
    Hey, progress is good! A little better each day is all we ask, right?
    I've Been Frosted

  5. #5
    Join Date
    Sep 2004
    Location
    USA
    Posts
    3,092
    More Prayers on the way...they won't stop.

    Thank You Kim for this wonderful siggy

    "When the power of love overcomes the love of power ,the world will know peace" jimi hendrix

  6. #6
    Join Date
    Oct 2000
    Location
    Los Angeles, CA USA
    Posts
    12,031
    For you it seems an eternity for the progress, but from here it really sounds good that he has improved by that much.

    Continued prayers are very important! You have mine.

  7. #7
    Join Date
    Nov 2006
    Location
    California
    Posts
    11,778
    You and your son have been and will continue to be in my thoughts.
    I'm glad to hear he is starting to feel better. Slowly but surely.
    Our goal in life should be - to be as good a person as our dog thinks we are.

    Thank you for the siggy, Michelle!


    Cindy (Human) - Taz (RB Tabby) - Zoee (RB Australian Shepherd) - Paizly (Dilute Tortie) - Taggart (Aussie Mix) - Jax (Brown & White Tabby), - Zeplyn (Cattle Dog Mix)

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