Oh Lut, I had NO idea!!! (((HUGS))) I thought your problems still came from your spine only (which would have actually been bad enough).
It's terrible not to know what's wrong, and facing days in the hospital with all these tests is depressing indeed! Two years ago, I had a lumbal punction and was allowed to get up after 6 hours, which was way too early - and I had the worst headaches of my life for 10 days!!
I'll keep you in my thoughts and wish you all the best!!
Kirsten
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