Scared for my son. Please help w/comments *Update 4/16*

[cassiesmom]

However, his CPK went from 500 to 700 to 1050 which I don't understand, since he's at 50% progress.

I looked this up, because I had a suspicion about why it was still rising but I just wanted to check.

Creatine phosphokinase (CPK or CK) is an enzyme found in the heart (muscle), skeletal muscle and also in the brain. CPK goes from the muscle to the bloodstream after an injury to the muscle (such as myositis or a heart attack, or even having multiple blood draws). It should start trending back down as the myositis continues to resolve.

Mary, I hope your son is doing better and better each day! I'll keep praying!

[Catty1]

Go, Glenn!!!

Are you getting some sleep these days, Mary?

[Medusa]

Glenn is doing better physically. He feels that he's at about 85%. He lost 5 lbs. and he has no appetite now, which concerns me because he's always been a voracious eater. But his girlfriend broke up w/him so I think that's contributing to it all. Nice, huh? She actually said "Am I going to have to take care of you for the rest of my life?" Such compassion. If that's the way she felt, she could've waited. She saw that he was improving and she could've waited til he was back to 100%. My heart aches for him right now. He's been through enough and didn't need this.

I haven't had a computer since Saturday and I'm currently waiting for replacement parts. My computer may quit before then, so if I don't post, you'll know why. This has just been an awful month, mentally, emotionally, physically and financially. I'm ready to have a breakdown myself.

[caseysmom]

Glenn is doing better physically. He feels that he's at about 85%. He lost 5 lbs. and he has no appetite now, which concerns me because he's always been a voracious eater. But his girlfriend broke up w/him so I think that's contributing to it all. Nice, huh? She actually said "Am I going to have to take care of you for the rest of my life?" Such compassion. If that's the way she felt, she could've waited. She saw that he was improving and she could've waited til he was back to 100%. My heart aches for him right now. He's been through enough and didn't need this.

I haven't had a computer since Saturday and I'm currently waiting for replacement parts. My computer may quit before then, so if I don't post, you'll know why. This has just been an awful month, mentally, emotionally, physically and financially. I'm ready to have a breakdown myself.

She broke up with him just because of this? Wow he can do better anyway poor guy.

[Karen]

Glenn is doing better physically. He feels that he's at about 85%. He lost 5 lbs. and he has no appetite now, which concerns me because he's always been a voracious eater. But his girlfriend broke up w/him so I think that's contributing to it all. Nice, huh? She actually said "Am I going to have to take care of you for the rest of my life?" Such compassion. If that's the way she felt, she could've waited. She saw that he was improving and she could've waited til he was back to 100%. My heart aches for him right now. He's been through enough and didn't need this.

I haven't had a computer since Saturday and I'm currently waiting for replacement parts. My computer may quit before then, so if I don't post, you'll know why. This has just been an awful month, mentally, emotionally, physically and financially. I'm ready to have a breakdown myself.

The "no appetite" thing could be due to the Prednisone. Prednisone makes me completely starving all the time, but my brother - Lady's Human - ends up having to reminded to eat - his appetite goes away completely. It's not much to worry about, when he's off the Pednisone entirely, it'll be back to normal.

It was so strange for me, my body saying "hungry! hungry! hungry!" when my brain knew I had just eaten my fill, and I couldn't possibly eat more.

[Medusa]

The "no appetite" thing could be due to the Prednisone.

I forgot to mention that his dr. took him off the Prednisone. He was only on it for 4 days. He said that Prednisone masks other diseases so he felt it wouldn't do him any good. Funny but when he was on it, he didn't get any better. When he went off it, he started to improve. His dr., my dr. and my friend who is a nurse, all say that his comeback has been remarkable. It usually takes 3-6 weeks before you see improvement and he's almost back to normal.

His "girlfriend", for lack of a better word, says she still has feelings for her ex-boyfriend. She was just looking for an out and she found one. Better that he find out now than when he was in deeper but I still think her timing was awful. My Mama Tiger claws have definitely come out on this one.

[catfamily]

I have to say that I am really upset and angry at His Girlfriend.What kind of person is she anyway?
One great thing is...he'll learn to pick the RIGHT one next.He'll see through everyone and their faults before giving his love again.
He'll be a better man and find a perfect wife and have a great family later on.
Don't worry...it's best for him to find out now about her.
The feeling of loss from her will pass,right after another lady starts flirting with him
He'll be fine,don't worry.
Mom's love is forever...and THAT is what counts
He'll have his own family later on...he's still young.
He's VERY lucky to have you.

[jennielynn1970]

God, and that girlfriend was a nurse as well??? What can you say about her bedside manner?? That just sucks that she would break up with him when he is sick and feeling so down. She must be a terribly self-centered person. Reminds me of the ex-wife of the marine on the Extreme Makeover Home Edition from last night (compassion-wise...)... Marine loses leg in Iraq, comes home, is going through rehab to get mobility back, and wife leaves him with the 4 kids to go off on her own. What kind of person does that??!!

[Medusa]

What kind of person does that??!!

A self centered one, that's what kind. I can't imagine doing that to a person. If she doesn't have feelings for him, ok, fair enough. You can't fake what ya ain't got. But her timing and her total lack of compassion is what gets me. He said that it's like she flipped a switch and just turned off. No signs, no warning, no cooling off. Just done. Period. She called him and wants to meet to talk further and he put her off until he's feeling better. This is not like my son at all. He's always been one to say if there's a dealbreaker, then so be it. He said that he's healing physically, emotionally and mentally and it's all too much for him right now. Personally, I don't trust her now. If she wants to get back together, she'll do it again. I wouldn't want to wait for the other shoe to drop. Enough about her. My son is improving and that's all I care about. This isn't his first relationship and it won't be his last. His heart will heal just as his body is healing.

[cassiesmom]

His girlfriend broke up w/him so I think that's contributing to it all. Nice, huh? She actually said "Am I going to have to take care of you for the rest of my life?" Such compassion.

Wait a moment, isn't your son's (now ex-) girlfriend a nurse? Geesh, that stinks. I am thinking of you and your son today & praying.