Quote Originally Posted by Medusa

Good news: all the drs. seem to agree that it's viral and not chronic and they're pleased somewhat w/his progress in certain areas. They're pleased that he can get up off the exam table on his own and shower, wash his hair, etc. But his reflexes aren't what they should be. They had him hold his hands out in front and link his fingers together and pull. He did it fine. But when they hit his knees w/the little reflex hammer, not good. He told me that on the way to the clinic that his knees were bothering him and he wasn't sure why. But since his other reflexes were working ok, they're not too alarmed. However, his CPK went from 500 to 700 to 1050 which I don't understand, since he's at 50% progress. So. He goes back March 7 for more blood work and a nerve conduction test to "be sure this doesn't come back" as the dr. put it. The dr. told him not to worry, that it isn't chronic, that he doesn't want him to lift anything today or tomorrow and that he can do light exercise. My son felt relieved when the dr. said that it isn't chronic. He said that as long as he continues to improve, he's ok. He just doesn't want to regress.

Btw, remember the dr. that I told you scared my son so badly and then laughed? Guess what her name is? Dr. Kevorkian! As it turns out, he actually has grown to like her. He said that she at least smiles. The other drs. are very serious and he doesn't like that.

So I'll continue to update on his progress which I'm hopeful will continue and for sure I'll post after his next visit to the clinic on March 7. He doesn't need to go back before then unless he gets worse, which we're pretty hopeful that he won't.
Thanks for all the updates, Mary. This has indeed be a scary one for us here, but the improvement he has had is impressive and encouraging. I'm sorry Dr. K. blurted out all the things she had been considering...but at least she considered them. She was trying to rule out everything she could possibly think of. I'd rather have a good diagnostician with a poor bedside manner than the other way around. I hope that your son will take things slow and gradual and not try to do too much, especially with the exercising. The last thing he...or you...or us...needs is a setback.