Scared for my son. Please help w/comments *Update 4/16*

[Randi]

I'm so sorry to hear about your son's illness. I hope he'll get his strength back soon and the condition is not too serious. I can certainly understand if he's scared and frustrated - and you too.

Fister and I will keep our paws and fingers crossed that he's back to normal soon.

((((hugs))))

[Medusa]

I just spoke to him and he said that he feels he's 25% improved, which is great news for me. He said that he can open a door w/his right hand now instead of using both hands but he still can't take a cap off a pen. He's calmed down quite a bit and even cracked a few jokes, so I'm more hopeful than I have been. My head has felt like it's been in a vise for the last couple of days because one of the drs. said it could be Lou Gehrig's disease and that's why he got so hysterical. When he told me, I thought I was going to pass out. I heard a loud clanging in my ears and I thought I was going to hit the floor. I know drs. become calloused due to working w/devastating illnesses but they need to realize that, when we're sick we're at our most scared and vulnerable. To say something like that to someone, especially someone as young and vital as my son and who has no one there w/him, is cruel. The other dr. told him last night "Well, we've ruled out Lou Gehrig's disease, multiple sclerosis, fibromyalgia, inclusion body myositis, polymyositis, etc. so I'd say that the ER dr. was right on when he said "acute" mysositis." My son and I both breathed a sigh of relief. They want him to go to the Muscular Dystrophy clinic due to the great diagnosticians they have there and they treat/diagnose several muscle diseases, not just muscular dystrophy and their services are free. But he said he'd only go if he gets worse and, right now, he's improving. So he goes back on Fri. and he's going to ask the dr. what his chances are of this recurring since it's labeled "acute" and not chronic. I don't know. I just do not know. What I do know is I've got to relax somehow. I have a gift card for a full day at a day spa that my son gave me for Mothers' Day last year and I still haven't used it. But I'm so stressed that I don't want to waste it right now. I want to go when I can enjoy it. But I sure could use a good deep tissue massage right about now.

[catfamily]

Wow...geez...at least for now it seems like this is GOOD news.Hopefully this will be gone for good...very soon.

[gini]

Oh, this news is so promising!

[Daisy and Delilah]

I will keep hoping and praying that he improves more and more. How awful for all of you. I know it's zapping all the strength you all have. {{{{{HUGS}}}}}

[Rachel]

The latest news is very encouraging. Your son being young has not much experience with the frailties of the human body, hence his impatience with his current condition. I do hope that you can convince him to give his body the time it needs to heal and do whatever it takes to assist in that healing.

[krazyaboutkatz]

Thanks for the great update. I'm so glad to hear that your son's condition it improving. Now hopefully you'll be able to relax.

[cassiesmom]

I know drs. become calloused due to working w/devastating illnesses but they need to realize that, when we're sick we're at our most scared and vulnerable. To say something like that to someone, especially someone as young and vital as my son and who has no one there w/him, is cruel. The other dr. told him last night "Well, we've ruled out Lou Gehrig's disease, multiple sclerosis, fibromyalgia, inclusion body myositis, polymyositis, etc. so I'd say that the ER dr. was right on when he said "acute" myositis." My son and I both breathed a sigh of relief. They want him to go to the Muscular Dystrophy clinic due to the great diagnosticians they have there and they treat/diagnose several muscle diseases, not just muscular dystrophy and their services are free. But he said he'd only go if he gets worse and, right now, he's improving.

I can see both sides of this one. Viral myositis makes sense to me. But on the other hand, I can see a doc wanting to pursue it further since your son is young, healthy and it would make sense to make sure his symptoms were not part of a condition other than viral myositis. Also good to know he can go to the MD clinic if that should be necessary.

Hug,
Elyse

[Medusa]

I can see both sides of this one.

It isn't that I don't understand why the dr. wants to do further testing. I just didn't like that she so flippantly blurted out what it could be. Until she knew for certain, she could've said "Let's just wait and see and not panic right now. We've got further testing to do." To put those words into his head (and mine) was terrifying and not easily erased.

[Medusa]

I just spoke w/my son and he feels that he's at 40%. He can now open the door w/his left hand, although not as easily as w/his right. He said he could take the cap off his pen but when he was talking w/me, he tried and couldn't do it at first, then he managed to do it. He washed his hair for the first time in a week but he wasn't able to scrub it the way he likes to but so far all he had been able to do is let the water run over his head. He said washing dishes is tricky. He can't hold the dish w/his left hand, he has to put it in the sink and wash it w/his right. He goes back to the walk-in clinic tomorrow for more blood tests and the results. He won't relax until he hears good news, even though the neurologist ruled out ALS, MS and many other too scary diseases to even mention. But as I said earlier, those words stayed in my mind and I haven't been able to erase them or the fear that goes w/them since that dr. said it and I know my son hasn't been able to either. So. Will you all please continue and even bump up your prayers for my son, that all will go well tomorrow and that we'll have some more good news so that we can exhale? I'm so tense that I can't even go to the bathroom.

[Karen]

Hey, progress is good! A little better each day is all we ask, right?

[catfamily]

More Prayers on the way...they won't stop.