Scared for my son. Please help w/comments *Update 4/16*

[krazyaboutkatz]

I'm glad to hear that your son's condition is starting to improve. Lots more prayers and positive thoughts are being sent his way. Please take care.

[catfamily]

in answer to who is mike... mike is my husband...if i ask him to say a quick prayer for someone i feel strongly that needs it...he accually does it
he's a good guy.
i'm lucky to have him.

[Medusa]

in answer to who is mike... mike is my husband...if i ask him to say a quick prayer for someone i feel strongly that needs it...he accually does it

I appreciate it beyond measure.

[Randi]

I'm so sorry to hear about your son's illness. I hope he'll get his strength back soon and the condition is not too serious. I can certainly understand if he's scared and frustrated - and you too.

Fister and I will keep our paws and fingers crossed that he's back to normal soon.

((((hugs))))

[Medusa]

I just spoke to him and he said that he feels he's 25% improved, which is great news for me. He said that he can open a door w/his right hand now instead of using both hands but he still can't take a cap off a pen. He's calmed down quite a bit and even cracked a few jokes, so I'm more hopeful than I have been. My head has felt like it's been in a vise for the last couple of days because one of the drs. said it could be Lou Gehrig's disease and that's why he got so hysterical. When he told me, I thought I was going to pass out. I heard a loud clanging in my ears and I thought I was going to hit the floor. I know drs. become calloused due to working w/devastating illnesses but they need to realize that, when we're sick we're at our most scared and vulnerable. To say something like that to someone, especially someone as young and vital as my son and who has no one there w/him, is cruel. The other dr. told him last night "Well, we've ruled out Lou Gehrig's disease, multiple sclerosis, fibromyalgia, inclusion body myositis, polymyositis, etc. so I'd say that the ER dr. was right on when he said "acute" mysositis." My son and I both breathed a sigh of relief. They want him to go to the Muscular Dystrophy clinic due to the great diagnosticians they have there and they treat/diagnose several muscle diseases, not just muscular dystrophy and their services are free. But he said he'd only go if he gets worse and, right now, he's improving. So he goes back on Fri. and he's going to ask the dr. what his chances are of this recurring since it's labeled "acute" and not chronic. I don't know. I just do not know. What I do know is I've got to relax somehow. I have a gift card for a full day at a day spa that my son gave me for Mothers' Day last year and I still haven't used it. But I'm so stressed that I don't want to waste it right now. I want to go when I can enjoy it. But I sure could use a good deep tissue massage right about now.

[catfamily]

Wow...geez...at least for now it seems like this is GOOD news.Hopefully this will be gone for good...very soon.

[gini]

Oh, this news is so promising!

[cassiesmom]

I know drs. become calloused due to working w/devastating illnesses but they need to realize that, when we're sick we're at our most scared and vulnerable. To say something like that to someone, especially someone as young and vital as my son and who has no one there w/him, is cruel. The other dr. told him last night "Well, we've ruled out Lou Gehrig's disease, multiple sclerosis, fibromyalgia, inclusion body myositis, polymyositis, etc. so I'd say that the ER dr. was right on when he said "acute" myositis." My son and I both breathed a sigh of relief. They want him to go to the Muscular Dystrophy clinic due to the great diagnosticians they have there and they treat/diagnose several muscle diseases, not just muscular dystrophy and their services are free. But he said he'd only go if he gets worse and, right now, he's improving.

I can see both sides of this one. Viral myositis makes sense to me. But on the other hand, I can see a doc wanting to pursue it further since your son is young, healthy and it would make sense to make sure his symptoms were not part of a condition other than viral myositis. Also good to know he can go to the MD clinic if that should be necessary.

Hug,
Elyse

[Medusa]

I can see both sides of this one.

It isn't that I don't understand why the dr. wants to do further testing. I just didn't like that she so flippantly blurted out what it could be. Until she knew for certain, she could've said "Let's just wait and see and not panic right now. We've got further testing to do." To put those words into his head (and mine) was terrifying and not easily erased.