Scared for my son. Please help w/comments *Update 4/16*

[cassiesmom]

Medusa, how is your son today? How did his neurologist appt. go? I hope the prednisone is starting to help.

[gini]

I keep hoping we have good news from your son - even a bit of improvement would lift his spirits.

[Medusa]

I haven't heard anything yet today. He called me last night after midnight Ohio time and he was just hysterical. The dr. who filled in for the specialist was saying that it "could be" this and it "could be" that. He yelled at her and said "You're not helping me. Stop freaking me out." To top it all off, his cell phone broke because he had difficulty plugging it in to charge it due to his lack of control of his hands and he has so many calls waiting for him and to make but he had to be at the hospital at 9:00 AM, so he couldn't go to Verizon first. I told him to ask his girlfriend or one of his friends to go to Verizon and get him a new phone. He was just shrieking last night, he was so scared. I didn't get to sleep until nearly 5:00 AM and I haven't been able to eat or even go to the bathroom, I'm so stressed. I'm able to distant healings for other people and for my son, nothing. I can't calm down.

[Grace]

It sounds as though he needs emotional as well as physical help right now. Would he consent to see a Psychologist?

[Medusa]

Anything I say to him right now isn't helping. The dr. who speculated shouldn't have done that when she saw he was in such an agitated state. She only made it worse. It's the sense of helplessness that has him so upset.

[Grace]

I'm just wondering if one is feeding off the other right now. He has the weakness, then agitates about it, probably magnifying the symptoms. He's in a vicious circle.

Are you able to talk with his girlfriend without him hearing? Possibly she might be able to get him to someone who can help?

[Medusa]

[QUOTE=Grace]I'm just wondering if one is feeding off the other right now. He has the weakness, then agitates about it, probably magnifying the symptoms. He's in a vicious circle.QUOTE]

That's exactly how it is. He did just now call me, though, and he does sound better. I asked him how he feels and if he thinks he's improving at all and he said "If I have to put a number on it, I'd say 5%". Yesterday, he wasn't able to lift himself up off the exam table; today he could. The dr. noticed the difference right away. Then, of course, another dr. came in and ran the same tests that the first dr. did. He ruled out multiple sclerosis and Lou Gehrig's disease and one other one that I'm hard pressed to remember right now. He's inclined to go along w/the first drs. diagonosis of acute myositis. My son said that part of his problem was that they took 15 vials of blood out of him yesterday and he didn't eat for another 10 1/2 hours. Then when his cell phone broke, that was it! They want him to visit the Muscular Dystrophy Clinic but he really doesn't have symptoms of that. The MDA clinic has really good diagnosticians and they treat muscle diseases other than MD and their services are free. He said that if he doesn't improve, he'll go. If he improves, he doesn't want to go. I'm not going to battle that w/him right now. His spirits improved and I'm going to let it be until Fri. when he has to go back in and be rechecked.

Forgot to mention that all of his blood work came back fine. No kidney problems, liver, heart, etc. His CPK is elevated but the dr. said that it isn't as high as some he's seen, so he's not concerned.