For all my fellow fibromyalgia pet talkers....PLEASE READ...

[Daisy and Delilah]

I've never had my vitamin D tested that I know of. I just had bloodwork done two weeks ago. I go for my physical this Friday to hear the outcome. I'll mention it to the doctor.

I'm not so sure about the magnesium thing either. This lady is the only person I know to have had the treatments. If it works so great, you think they would try it on everybody. I bought magnesium tablets after hearing the success story and they didn't effect me at all.

I just responded to Slick in the thread I started for Lyrica. This is supposed to be the only medication for people with FM. After reading Slick's info on it, I'm not thrilled with the side effects.

Carole, the fact that doctors don't readily test people for vitamin D levels and other simple things, makes me wonder if alot of them even know what they're doing. I once met a lady with extremely severe psoriasis. She accidentally discovered that vitamins A and D would clear up her skin in a heartbeat. She self medicated and cleared her skin. None of her doctors had begun to have answers for her. It makes us wonder.

Carole, I wish you the very best and I can't wait to hear an update.

[carole]

yep sadly sometimes the side effects are worse than what you are being treated for,only you can decide if it is your drug of choice.

Just remember one thing, every drug has a list of side effects, some over twenty and you may not get any,or if you do only a few,so don't be too put off by that ok. i take somac for Gerds gastric reflux, the side effects are many, and i can't say i have noticed any, so good luck .

Yes i read about that skin condition being treated with Vitamin D,lack of that vitamin can cause so much, it amazes me, I won't beable to give you much of an update for a while, as it will take at least three months to get any improvement if there is any to speak of.

Do ask for the test, even those without fibro should be requesting it, it is becoming so common, because we are all using sunscreens so much to avoid getting skin cancer,caught between a rock and hard place, i think if i go out for ten mins a day when the sun is not at its worst i should beable to get enough,it is a pity i have to take the supplement first, but that is what i have to do.

I honestly don't hold out much hope that my fibro is due to lack of this vitamin, as i said before i have had it so long now and if my deficency had been happening that long, i think by now i would have developed some rather serious health issues,but one cannot exclude it all together, i still hold onto a glimmer of hope in that department.

[Catty1]

While I was looking thru the links, I read some suggestions that a good Vitamin D supplement should come from a fish oil source. Good old cod liver oil?

The dosage I read for Canadians over the age of - 6? - was 1000 IU

I think I'll try it anyway!

I really hope this works for folks who try it!

hugs!

[carole]

yes unfortunately i cannot take that because of my allergy to fish, i took the pill last night, and this morning i feel sick, nauseated, so i checked on the internet and sure enough that can be one of the side effects, i hope it does not last for too long, i only take one pill per month for three months,feel like i might be visiting mr porcelain today, but hopefully not eh?

[smokey the elder]

I think a small exposure to sunlight will allow your body to synthesize enough vitamin D while not unduly increasing your risk of skin cancer. I know the high latitudes can be a problem. Is there a synthetic D that you can get which is not extracted from fish oil?

[momoffuzzyfaces]

I'll be sure and talk this over with my dr in Jan. Since I've been allergic to milk since I was 25, I always take a calcium suppliment with D though. I also take a mulit-vitamin every day. Maybe we with fibromyalgia would need mega doses though.

[carole]

well according to the pharmacist,this is not a known side effect of the pill i am taking, so maybe it has nothing to do with it, maybe my ticky tummy has flared up again, will know for sure if next month it does the same won't I?

They still recommend not taking the risk with getting skin cancer, but putting sunscreen on stops the vitamin d reaching our bodies, i am in a catch 22 really, she says i can take this pill long term, but i would rather not myself, i am worried about spending ten mins a day in the sun without sunscreen though, our rays are the worst in the world here in nz, even worse than oz,and i am fair skinned, i am scottish after all, so i don't really know what is the best thing for me to do really.

You can get vitamin d from eggs as well, i do eat eggs but limit myself to four a week, for the cholestrol side of things, mine is great and i want to keep it that way.

Well folks if in months time my fibro has improved or gone away you will all be the first to know, i will be celebrating that for sure, however i am not holding my breath, but i am hoping there will be an improvement in my fatigue levels and pain all round, so here's hoping.

[Chica]

Carole,
That was a very interesting subject. Whenever I go to the doctor's I allways insist on other things to be checked for me, and they do it. People have to speak up when they see their doctor.

[carole]

Yes you sure do, one has to look after themselves, let's face it you are not much more than a number to the doctor's really.

I think this info is especially important to people who have just been recently diagnosed with Fibro, unfortunately i do not hold out much hope for those of us who have had for years, like myself,as i pointed out before if we had a chronic vitamin D problem for all those years, i would be having some other serious health issues by now, surely.

I have passed this on to my girlfriends sister, as she has just been recently diagnosed, and apparently she does not go out in the sun much and is dark skinned, so one can only but hope.,would be great to hear that someone only had a vitamin D problem and not the fibro wouldn't it?

Anyhow no symptons from the pill today, infact the nausea eased as the day went on, the doctor advised me this would happen, so glad about that.

Take care everyone,hope you are not feeling too awful today, gentle hugs.