For all my fellow fibromyalgia pet talkers....PLEASE READ...

[carole]

Yes i am aware that vitamin D deficency is quite serious really as it can lead to many potentially serious health problems.

Another problem for me is diet wise, i am unable to eat any fish, as i am allergic, another source of vitamin D, i have been drinking a milk with added vitamin D for over a year now, but you would have to drink ten tall glasses a day of that to even come close to the daily minimum, well i went out and got my ten minutes sunshine today, although it is a really cloudy and blustery day here, wind is strong,but i will do my best to get this right, i need to take the medication first though and take it from there with another blood test in three months time.

I have heard of the drug you mention, it is not available here in NZ, i have had fibro for over twelve years, and i prefer not to take any drugs, at first i was given amitriptilene (excuse spelling), it was digusting, it made me feel terrible, never again, i only take panadol, which is an over the counter pain relief for headaches, etc, it helps somewhat, but not a lot,other than that i try to exercise a little and eat healthy.

I do wish you well and hope you find that the new drug does indeed help you, BTW have you had your vitamin D tested to make sure the levels are ok,? i strongly advise you to, you never know eh?
I figure it will help my fibromyalgia when i get that sorted, as it can cause you to have very similar effects like the aches and pains, of course fibro is much more than that,very complex illness,i have had extreme chronic fatigue lately, which i do get from time to time with the fibro, but it has been un-relenting, but now i discover my lack of this vitamin can indeed cause that too,never ending it seems, got the low iron sorted , now this, ho hum, at least i can fix it, that is the good thing.

Just wanted to add, about the magnesium theory, i am not sure myself if i entirely agree with this, but honestly everyone is different, there are not two people alike with fibro, some have it mildly, some severly, and what helps one does not necessarily help another, you have to try what you think is best for you and see if it works,there are a lot of alternative ideas in regard to helping our condition, but i do not have that kinda of money to spend on them.
Some offer only temporary relief, i have tried acupunture and yes it did work, but again it was only a temporary thing, soaking in a spa pool with the jets strongly pulsating on your body, is painful, but i found if you can get through the agony, you get the relief later, again temporary,it is trial and error with this complex annoying and disabling illness.

I would like to question the medical profession about this, if they know already that a deficency in vitamin D is linked to things like Crohns disease, ulcerative colitis, cancers and fibromyalgia, then why are they not testing these people when diagnosed immediately for their vitamin D levels, man oh man i would be livid if it were found i had suffered in pain for 12 years and it were found that it was my vitamin D deficency that caused it, part of me would be over the moon to know i would be rid of it, but i would be very upset to think the medical profession knows this and yet does nothing to ascertain whether it is the reason or not. grrr......