Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[Barbara]

Sammy good to hear from you! You'll soon be soo glad you can use that pawsie

[sasvermont]

I surely hope things are running smoothly for you and your family, sweet child.

I think of you often and wish you only the most fun things in life from now on.

You are such a special girl to all of us.

Love,
Sas and her campers

[slick]

Thanks for bumping this up SAS. I just noticed that this thread was started a year ago and just look at the progress that Sammy has made.

I hope you are doing well Sammy and I'm blowing you kisses from Canada.

{{{hugs}}} for Jessica and family.

[Cinder & Smoke]

Sammy & the Easter Bunny - March 31, 2006




Saturday, May 20, 2006 at 06:15 AM EDT

Sam's scope was yesterday (a look at the old trach area/throat),
and the scarring is minimal; it hasn't closed completely, though,
so the ENT doc tried to help that along w/a cauterizing technique,
to encourage the area to heal over again.
But if it's not closed within a couple weeks, Sam will have to have surgery to close it. It's not a major deal, but she'd have to be in the hospital for a couple days, so we'll hope it closes.

She saw her kidney doc afterward, and she was pretty crabby (we'd been at the hospital since 6 a.m.), so he made it a brief visit, just adjusting a med after seeing her lab results.

Her hand has healed nicely, and Shriner's sent her 3 new pairs of gloves,
w/lace sewn on the edges, adding a feminine touch to her pressure suit.
Sam was pleased. She's using the hand normally again.

She's also making a little progress w/the legs; she doesn't complain as much w/them on, and is taking a few steps w/her walker. She wears them more at school now as well. We're really hoping to see a lot of progress this summer.

Thanks,
Jessica

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All Systems *GO*!

Your Fan Club is here to *Cheer* you on for a Fun Summer, Sammy.

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[Maya & Inka's mommy]

Aw, what a sweet and very brave little girl she is! It is great to see how much progress she is making!!

[Barbara]

In the NY Times they had an article about ballet classes for little girls in similar situations. I just had to think of it because looking at your face dear Sammy we can see that there lives a star in you

[Cinder & Smoke]

Tuesday, June 06, 2006 at 07:39 AM EDT

Nothing major to report, which certainly isn't a bad thing!
Sam's throat looks like it's closing this time, but we've been fooled before,
so it's still sort of a wait-and-see.

We're still moving right along with the legs, and she wears them a lot more;
she's a bit restricted in them, though, so they limit her activity, which is frustrating.
There's definitely been progress, however, so we're happy with that.

She's also made a lot of progress w/toilet training, and
uses her potty seat very regularly, letting us know when she needs to use it,
so that's a big step for her as well.

We don't return to Children's until the end of the month, and
then to Lexington the beginning of July;
Sam will see her eye doc this Saturday, and hopefully will get a good report.

I uploaded some more pics for your viewing enjoyment;
thanks for continued prayers, and enjoy the summer!

Jessica

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"Lookin Good", Kiddo!!