Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[slick]

If there is one thread I check everyday, it's this one. Little Sammy, at Midnight Mass I said a special prayer for you and I heard God whisper that everything is going to be OK. What a wonderful way to spend New Year's Eve....home with your loved ones. Oh dear, here comes LES again....

Sending big {{{hugs}}} to Johanna, Jessica and the rest of the family.

[Barbara]

Ok, Sammy now we try to concentrate on New Year's eve! One step after another- and you come a long way

[RobiLee]

I think of Sammy everyday and read the postings daily.

Sammy, you are always in my thoughts and prayers and I'm hoping that you will be home for the New Year.

Hugs!

[Cinder & Smoke]

Wednesday, December 28, 2005 at 03:19 PM EST


Sam's napping now; she was actually up by 9 today,
as the OT came in to work with her.

They're removing her central line momentarily,
so her nap will come to an abrupt end.

We strolled around downstairs today, which she really enjoyed.
She's been babbling quite a bit, and smiling a lot, which is wonderful to see.
She's still holding saliva in her mouth, though, which is an obstacle to
both talking and eating; hopefully once we're home, that'll resolve. ..

And we might be going home tomorrow!
It's not definite yet, but it's the latest word;
I suppose if they change their minds, we can just stroll on out --
it's not like we don't know where all the exits are.

All immunology work thus far has come back normal.
They are going to look at a few more things -- really unusual stuff --
as most of what they typically see insofar as immune dysfunction has been ruled out. The genetics testing will take some time, so we likely won't know anything for a while, unless, of course, they're looking for the cuteness gene!!!
We're very sure that one's dominant in Sam! (Our unbiased opinion, naturally.)

Sam had her first set of kidney labs done by finger stick today,
and hopefully it will match up w/labs pulled from her line,
as after today, she won't have a line anymore.
We'll still be seeing our kidney friends regularly after discharge.

Well, that's the latest ...
hopefully I'll be typing my next update from the heart of Brown County, OH.

Thanks,

Jessica

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We'll all Pray that Sammy is HOMEward Bound tomorrow!

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[sasvermont]

As I am sure everyone would..... I am putting my money on Sammy and family being home today, for the weekend and to start the new year off on a positive note. I surely hope my dream comes true for them. Gosh.

I think if we could "buy" good health for little Sammy, she would have a million dollars from all of us, in five minutes.

Here's to 2006!

[Cinder & Smoke]

Friday, December 30, 2005 at 08:54 PM EST

Sam's had a good first day at home;
she slept through the night last night,
and didn't wake up until nearly 11:00 this morning!

I spent the morning catching up on nearly 3 weeks of housework,
but it sure beats being at the hospital.

It was so nice to peek in her crib and see Sam curled up on her side,
snoozing away. She's enjoying lots of new toys,
and she's been sipping juice, and even had a bowl of Honeycombs.
We are still going to supplement her diet w/her formula,
and have her "on the tube" overnight,
but let her eat and drink whatever she will during the day.

I was pleasantly surprised that she was willing & able to eat by mouth
her first day home; the drooling has stopped, so that could be a factor --
I noticed that it had nearly stopped her last day at Children's.

She's more and more herself each day.
I think she's just resting up for all the great things she has planned for '06!

Thanks,

Jessica

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HOME, Sweet HOME!!


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[Barbara]

Sammy! Way to go!