Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[Barbara]

Oh that is something to keep fingers crossed about. I hope so much all these lymphocytes are just a little varying....

[Cinder & Smoke]

"Daddy!"



December 21, 2005 at 04:31 PM EST



Well, three words ... when Daddy came in after work,
she cried out, "Daddy!"


So we have the Wiggles, Barney and Daddy ...
could Mama be next?


I'm going to be upset if it's "Baby Bop."

/s/ Jessica (aka Mommy)

[Cinder & Smoke]

Wednesday, December 21, 2005 at 07:53 PM EST


Yes, three updates in one day...it's been a busy one.
Around 5:00, Sam started throwing a HUGE fit,
complete w/screaming and flailing.


They had to bandage her stumps, as she was kicking and thrashing
so much, scabs broke and she started bleeding quite a bit.

This went on for a good 30-45 minutes; she was not easy to sedate.
It seemed like fear/anxiety to us,
but she's likely in some discomfort as well.


They wound up calling one of her ICU docs down to take a look;
he suggested blood pressure meds, as her BP was getting a bit high,
lasix, a chest x-ray and a blood transfusion,
as she's been seeping a bit from the wounds.

Hopefully the x-ray shows nothing.


She's quiet now, but not sleeping -- she's huddled under her red
blanket, looking quite mad.

It was a very unpleasant thing to see --
it took 3 people just to hold her down
while a plastics doc bandaged her up.
(We were helping, but it didn't comfort her at all.)


We don't know if this means she's really coming out of it,
and realizing where she is, or if something else is going on;
the ICU doc doesn't think it's any type of withdrawal from sedation
or anything, and neuro says it's not a typical response
to the removal of an anti-seizure med.


So....more waiting and wondering.

Let's hope Sam sleeps soundly and peacefully tonight.


Thanks,


Jessica

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Prayers for a quiet, restful night;
and a Better Day tomorrow.

{{{Hugs}}} for Sammy, Jessica, and Rob.

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[jenluckenbach]

How frightening and sad. More prayers for you, Samantha.

[Craftlady]

I get notification of updates via email from the hospital site. I always hold my breath when I see an update has been made that it is a positive one. This had got to be a stressful time for her and the family, this little gal sure is a fighter that has had to endure way more than any child should ever have to experience. Will continue to keep good thoughts and prayers for the days ahead that the doctors will find the answers.

[Barbara]

Yes- that sounds frightening. I hope they can do something to get her feel better- and find out what is happening. I am so sorry- I hope Sammy is soon on a better way.......

[Cinder & Smoke]

Thursday, December 22, 2005 at 04:13 PM EST



Late last night, the decision was made to monitor Sam closely
in the ICU for a couple more days;
her BP remained high, and her breathing seemed a bit labored.

Both issues were resolved overnight,
but she'll remain in ICU until at least tomorrow.

Nothing is growing out of any cultures so far, and
they did another cat scan last night, which was normal.

It's possible that her kidneys aren't getting enough acid out,
which could cause some of her symptoms, so they are addressing that.

She's a little more alert today,
and we're trying to get her to eat and drink,
as that's one of the criteria for discharge;
if she's unable to eat by tomorrow,
we'll have to consider a feeding tube again, at least temporarily.

I've gotten a couple smiles out of her today,
but she is not happy to be here at all.
Please keep her in your prayers.

Thanks,

Jessica

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A "couple smles" is better than none.

We'll make sure Sandy Paws knows where to find you on Christmas Eve.