Johanna (Cataholic) & Sister Jessica continue to Request Prayers for young Samantha

[sasvermont]

I think of this child and her family nearly every day, several times a day. I hope she is continuing to improve and that life begins to resemble something rather ordinary for all of them. Sammy and her family ARE exceptional people!

I hope they are all fine..........

Keep up the hard work.......

Thinking of you Sammy dearest.

Love,

Camp Vermont

[Cinder & Smoke]

Sunday, October 16, 2005 at 08:41 PM EDT

Well, the feeding tube came out Monday, and Sam is managing to eat and drink like the big girl she is. The eating was slow--bite by bite--for most of the week, but really picked up this weekend.

She went out to eat with Mom and Dad tonight, and really put away the fish and tartar sauce; Mom even managed to get most of the sauce out of her hair by the time we left. She's drinking plenty, and the doc said that was the most important thing in the beginning.


On Monday, she saw her eye doc, and he was pleased; her nystagmus (eyes rolling back and forth, common in albinism)has decreased, and her illness seems to have had no effect on her vision. She will probably get glasses next year, as they seem to help lots of kids w/albinism, but her doc said there's no rush, as toddlers either won't keep them on, or break them, and after all she's been through, he didn't want to start something new right now.


Before her appointment, she got to spend some time w/her cousin Jonah (or "Jono," as she calls him), and see Grandma. She had a great week at daycare as well.


Her plastic surgeon, who also works at Shriner's, wants us to reconsider Shriner's for her rehab; he had already spoken to them, and told us that they'd be willing to accept her back for rehab, which would mean they would coordinate therapies, prosthetics and any future surgeries. He says we would start on a "fresh page" with them, and is setting up a meeting for all of us to discuss this possibility. He feels her rehab would be best handled by those w/the most experience w/cases like Sam's, so we'll see. We have another kidney check-up Friday, so keep your fingers crossed for Sam.


Thanks,
Jessica

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Fish 'n' Sauce looks Good on ya, Sammy!!

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[NoahsMommy]

This is great news! Thanks for the uppydate, Phred.

Glad to see the feeding tube is out and she's enjoying eating and being with friends/family.

Go Sammy, Go!!

[Barbara]

After I came back from my vacation I wondered how Sammy was and I am so glad things are going more towards a normal life. Being in daycare, going on a merry-go-round, meeting cousin Jonah and of course eating Like Sallyanne I think of Sammy and her family all the time.
Thanks Phred for keeping us updated

[Logan]

I saw there was an update on my email this morning. What delightful news!!!

[sasvermont]

Sammy, you go girl! Can't wait to see a photo of this child....ahemmmmm!

[ramanth]

Wonderful news!

[gini]

This is such wonderful news about Sammy. I bet Mom loved every minute of getting the sauce out of her hair because it sounds like just the normal thing to have happen with a toddler!

Sammy - what a gift you have been for all of us and you will continue to receive my prayers.

[rg_girlca]

This is such good news hearing that they have removed her feeding tube and she is starting to eat bit by bit. Sammy, you have come a long way little one. Keep up the good work.
Prayers on the way for a good kidney check up on friday.