There was a new update this morning to the Carepages, and Sammy is headed back to Children's after a bad night:

May 21, 2005 at 12:08 PM EDT

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Plans have changed, and we are on our way back to Children's. Sam ran a high fever all thru the night--over 104--and was having chills/seizures, heart rate up over 200, etc. They wanted to do surgery anyway, but I refused to consent, and asked them to transfer her back to Children's. They are at least able to make her comfortable over there, and I have much more faith in their acute care abilities there. We are distraught w/the direction things are taking here, and after much discussion, this is what we've decided. We don't know what will happen from here. Sam seems to be suffering right now, and we have grave concerns about her quality of life, and can't seem to reach any kind of agreement w/the medical personnel here, and there have already been heated arguments. We just don't have the trust and faith that we had at Children's. I will update again later; we have lots to discuss w/the doctors at Children's, so we ask, for the time being, that no one visit until we've had time to take care of things there. Thank you for your continued prayers.
Jessica
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Continued heartfelt prayers.