Lut - like you don't have enough to deal with - but sounds like you need an advocate...you're right, wait til when????

As I pm'd you, my sister has had MS for 20 years - and the MS Society has nurses and other people available to just confer with. They are on the client's side, and can really help on a personal level. They might have some advice to get around "waiting til it gets worse".

There must be a chapter in your area, if you haven't been in touch already. Tell them what you are dealing with.

In case you don't have it, here it is: http://www.ms-sep.be/

hugs
Catty1