I'm so sorry you have been going thru all this and more to come..
I hate to think of suffering like that..im crying for you cause my heart hurts for you so much..I will keep you in my prayers.My daughter had a deseased heart..no help but a heart transplant, which she wouldnt be able to get in time to save her..they doctors allsaid she would not live 2 years , we agreed in prayer that God would give her a new heart, now her heart was totally destroyed except for a tiny part that ws barely keeping her alive..and we prayerd and trusted God..and before the 2 years was up, they doctors were so amazed they couldnt belive her heart is complety new, like new tissuse and evey thing..We stand on our belive that God answers prayers because we have seen him do it so much..put your trust in God and let the doctors help with what they can, but belive with all your heart that whatsoeevey you ask in the name of Jeus he will give you..God bless you so very much..