Saturday, December 27, 2005 at 07:28 PM EST


Sam continues on that road to improvement;
she's much more alert and responsive now,
though still not quite back to her usual SuperSam self.

She greeted me w/a "Hi, Mom," when she woke up today at the crack of noon.
(I'm not sure if she's now calling me "mom,"
or if she's only doing half of "mama" during her recovery phase!)

No big news on the immunology front;
the complement part he was looking at checked out normal,
and other results aren't in yet, due to the holidays.

The genetics dept. is now in the game
(will there be a dept. we don't see in Children's?? )
and will be sending some bloodwork out of state for more tests --
there's a doc in Colorado, I think, who's going to take a look.
(They will be checking to make sure this isn't a certain subtype
of her platelet defect that's linked to immune system problems.
The doc at the NIH doesn't think it is. Anyway ...)

Her central line should come out tomorrow morning,
after everyone's had a chance to draw their labs.
She's tolerating the feeds really well, so she will go home on the tube
for a while, until we get her eating again.
She's drinking a little by cup.

She's allowed out of her room now, so we brought her stroller up,
and take her downstairs a lot ... nothing really exciting down there,
but it sure beats this room!

We're really hoping to be out of here before '06,
so think some happy new year thoughts for us.

Thanks,

Jessica

-----------------------------------------------------

*Home* for New Year's sounds good ...
We'll ask God to try to schedule that for Sammy!