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Thread: Fibromyaligia people.......

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  1. #1
    Join Date
    Mar 2003
    Location
    Desert Southwest
    Posts
    1,362

    Fibromyaligia people.......

    Just got back from my doctor and he prescribed a new Rx for me....... Cymbalta. It is meant for depression, but it is also now used for Diabetic neuropathy pain (fibro fits under that catagory).

    So, does anyone take Cymbalta????

    After reading all the 'bad' things it can bring on, I am a little, well really quite worried about taking this drug.

    I want to hear all the good AND bad things about this. I'm not quite sure of taking this!


    Please, any comments?????
    Bunny & Kitties:

    Taz - F (7); Majerle - M (4) & Loki - M (8 months)
    (pronounced: Marley).

  2. #2
    Oh boy. You asked so I'll tell ya. I too have fibromyalgia and arthritis plus I had a bad case of shingles a couple of years ago which ramped up the pain considerably so my dr. started me on it several months ago and I must admit that in the beginning it did help. After about a month and a half, though, I got stomach cramps, severe enough to double me over and they lasted for several hours. I put up w/that for 2 weeks (why, I have no idea; desperate, I guess) and I called my dr's. office. He was out of town so the medical asst. or whatever she was told me to stop taking it. I said "Shouldn't I be weaned off it?" She said "No, just stop taking it."

    WELL. I got these "brain zaps" for lack of a better word. Imagine how your arm feels when you hit your funny bone in your elbow. That's what was happening in my head, hundreds of times a day. If I looked down, they weren't as severe but if I moved my head in any other direction, they were so frequent and painful that at times I actually drooled. I laid in my bedroom w/the lights off for 3 days and nights and after about 10 days, the brain zaps finally stopped. I got on the Internet to look up these brain zaps and apparently, they're a very common side effect when you go off Cymbalta, at least if you go cold turkey the way I did. My dr. swears he never heard of such a thing, so I directed him to the websites that discussed the subject and he says that he cornered the drug reps and they swear they never heard of such a thing either. I told him point blank "They're lying." I should have been weaned off it, even though I was only on it a short period of time.

    I just had my regular checkup yesterday and he wants me to start high intensity training. Yeah, ok, I have days when I can hardly navigate and he wants me to do that kind of workout. I will NEVER take any type of psychotropic drug again, I don't care how good it's claimed to be. Oh, one other thing....I gained 9 lbs. in that month and a half and it's welded to me now. I can't get that weight off for anything. It's supposed to be "weight neutral". Another lie the drug reps told. I still have a problem in rooms that are too brightly lit, especially w/fluorescent lighting; the brain zaps come back. When I went to my dr's. office, they had to turn out all the lights in the room where we had our consultation. I suppose that there are others who have done well w/Cymbalta but I clearly am not one of them. I feel bad telling you all this because I know how desperate I get, just wanting a good night's sleep and a day free of pain. But you asked and I felt you should know. Good luck and let us know how you're doing.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

  3. #3
    Join Date
    Jun 2003
    Location
    Florida, USA
    Posts
    14,038
    I have been taking Cymbalta for about 6 months. I absolutely love it. It was prescribed to me for neuropathy and fibromyalgia. It has really made me feel like a new person. I am only able to take 30mg. once a day so far. I've tried 60mg. and it is just too much for me. My neurologist recently prescribed 20 mg. capsules to add to the 30's. I will try that as soon as I get over the cold I've got now. I understand the normal daily dosage to be at least 60mg. so that's why we're trying more medication. It supposedly would optimize pain lessening.

    One of my doctors prescribed Lyrica for me. It didn't agree with me at all. Alot of people swear by it but I just couldn't take it. I went back on the Cymbalta.

    I don't know about the withdrawal symptoms for Cymbalta so I have nothing to offer there. I have heard great stories about it and horror stories as well. If you decide to take it, I would love to hear an update. Good luck with it!!


    I've been Boo'd...
    Thanks Barry!

  4. #4
    Join Date
    Jan 2001
    Location
    columbus, ohio, usa
    Posts
    3,110
    i took 2 of the lowest does of cymbalta. i had an anxiety attack that was AWFUL. i was shaking, crying, i kept checking alex b/c i was sure there was something, anything wrong with him. i gave all of the unopened ones back to my doctor. never again for me.
    joyce who has princess peanut, spokesdog for the catpack, mojo, magic, kira and squirty, members of the catpack, angel duke, a good dog who is missed and angel alex the wonder dog, handsome prince.

  5. #5
    Join Date
    Sep 2003
    Location
    Williamstown, Kentucky
    Posts
    3,481
    I was on a very low dose for 3 weeks and gave me terrible diarreha and you NEVER knew when it was going to occur. Thank god I was given samples, I pitched them in the trash. Thankfully, didnt have any ill effects going off them cold turkey. It took a couple days for the diarreha episodes to stop.
    I know others who have had no ill effects.
    Owned by my 8 precious furry kids... My 3 daughters Cindy & Abby & Aly and 5 sons Skinny, Stephen, Carson, Fuzzmuzz and Franklin.
    Owned by two special canine sons Coco and Snoopy and two canine daughters, Sadie and Gretchen

    Always in our hearts RBButterscotch & RBThumper, RB Ms. Eleanor

  6. #6
    Join Date
    Jun 2001
    Location
    Glenside, pa
    Posts
    7,399
    I take 75 mgs of Zoloft a day, but it was not specifically prescribed for fibo. But, I noticed that my outbreaks are fewer and less painful. I guess everybody's reaction is different, because I've lost weight on it.It makes me slightly loopy sometimes (more than usual ) but it's made a world of difference.

    I have no reason to change, but I've been told that the new Fibo drug. Lyrica has terrible side affects.

    It's probably me but I've taken up drinking lots of water and I excercise at a gym and have had less flairups. I count my blessings and cross my fingers every day.



    I've been Boooo'd!

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