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Thread: Just Need a Place to "Voice" my Fears. *Update*

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  1. #1
    Join Date
    Jul 2002
    Location
    New Madrid County Missouri
    Posts
    1,023

    Just Need a Place to "Voice" my Fears. *Update*

    After reading Medusa's post about her son's rush to the ER it got me to thinking about my younger (Can't call him little anymore) cousin. Before I describe the latest drama that scared the crap out of me, let me give you a little background.

    Richie (my cousin) was born with a defect in his heart which had to be corrected surgically when he was about 5 days old. They had to go in a replace a valve in his heart with a mechanical one. Of course this valve had to be replaced as he grew so he's had multiple open heart surgeries throughout his 17 + (he'll be 18 next month) years. In the summer of '02 (I think), a couple weeks after going down to Memphis, TN (he was born there and they later moved back to New Madrid County) to see his heart doctor, he got really sick. My aunt called and said he was running a temp of 103 degrees and she couldn't get it to come down. So we took him to the nearest (though pretty crappy - but I'll get to that in a minute) hospital. Sikeston's (the above mentioned crappy) Hospital did not know what was wrong so they decided to send him back to Memphis (don't remember which one it was) Hospital. Memphis concluded that it was a Staph infection in his blood stream but they could not get rid of the infection. They sent him to Little Rock, AR (again I don't remember which hospital) where they determined that the infection was breeding on the artificial valve and had moved into the surrounding wall of the heart. Problem was unlike Memphis which is only a couple hours away, Little Rock was a 5 hour drive so there would be no support from the family on a daily basis for my aunt. After talking it over we did what we always do and pulled together for her. I offered my car so she wouldn't be stranded at the hospital or hotel room and my cell phone. Grandma offer her credit cards for the hotel room and Mom went down and spent week at a time for support. Richie came out of that fine. They had to go in and remove the artificial valve and the wall that separates the two chambers on the left side of his heart that the valve was attached to. Everything was fine after that. He never had anymore problems, the docs said that he could be a normal teenager after a while. He was on blood thinners all his life because of the valve so he was suppose to avoid anything that might cause him to get injured. No bike, skateboard, ect. so as you can guess once the infection was gone he was one happy boy.

    A couple week ago, Mom got a call from my aunt saying that Richie was having chest pains and she couldn't get a hold of 911 on the cell phones. (They don't have a house phone) Mom rushed over and picked them up and was rushing to the Sikeston hospital because they didn't think he could make it the extra 25 miles to Cape Giradeau. Mary (Richie's mom) called our other aunt Erma, who works as a nurse at the hospital, to tell her that they were bringing Richie in. Erma told her to have Mom stop the car because she was sending the ambulance to pick him up. Once they get to the hospital, Richie says that the pain in his chest was moving up his neck and down his left arm and hand. He actually stopped breathing and past out once sitting in the waiting room. The hospital put an oxygen mask on him and gave him a shot of nitroglycerin and asprin. They kept him overnight for observation then released him the next day saying he just had a bad case of bronchitis. Bronchitis? Really? I may not have any medical training but it sounds like he the symptoms and treatment of a HEART ATTACK!!!! I develop bronchitis at least once a year (except for the three years I was away from the smokers down here) and I have never had frickin' chest pains and passed out. Even Erma said the boy had a heart attack! But Mary, who doesn't believe the docs anymore than the rest of us, refuses to take him for a second opinion. His Docs in Little Rock wouldn't see him earlier (he had an appointment yesterday) unless the doctor who attended to him recommends that he be seen. I stopped by last Sat. to drop something off with Grandma and Richie was outside working on the family car. As I was sitting outside in Grandma's car waiting on Mary and G-ma to finish talking beside the car. I noticed Richie squatting beside Mary's car. I called him over, he was sweating even though it was only 50 F and he couldn't catch his breath. I told him to go take a break and he said he just came out from a break 5 minutes ago. Grandma, of course, jumped all over him and told him to go in the house and not come back out until he was better. But it scared the crap out of me.

    We've always known in the back of our minds that Richie was sick. I mean it was a pretty hard fact to ignore with him going in every so often to have someone dig around in his chest. But we've never really thought of him as having anything wrong. He has always acted just like any other kid his age. Now his heart problem is obvious (at least to me) for the first time. He hasn't been to school but once and he said he couldn't even walk around the halls from class to class without getting winded. I'm scared that something is seriously wrong. They won't have any of the results from the tests they ran yesterday for weeks and I'm scared that he doesn't have that long. I can't say any of this to my family though because I'm suppose to be the strong reassuring one. "Everything's going to be fine." "It'll all work itself out in the end." Ect. But I don't know. I can't lose Richie. He's like my little brother. I'll just fall apart.

    Well thanks for letting me whine for a little bit. I just had to put it out there to someone that I'm scared and confused.
    Last edited by Andie; 04-02-2008 at 10:28 PM.
    Hold your head high.
    Don't ever let 'em define
    The light in your eyes.
    Love yourself, give them Hell.
    You can take on this world.
    You just stand and be strong
    And then fight
    Like a girl.

  2. #2
    Given Richie's medical history, if you need to call 911 again, immediately say "I think he's having a heart attack". That will get you immediate attention. If Erma said he was having a heart attack and the drs. didn't listen, find another hospital w/drs. who will listen. Time is of the essence in such cases but I'm sure you already know that.

    When we read of stories of others who are sick or who have sick loved ones, we pray for them and hope that all will be well. But when it hits home, sometimes we allow fear to take over. I speak from experience when I tell you that you should also pray to have fear removed from your heart and mind. During my son's temporary paralysis, I became paralyzed w/fear. To be fearful is the worst thing that you can do for Richie and to yourself. Whenever fear tries to rear it's ugly head, I say "Peace. Be still." It helps to keep me strong and I needed to be strong for Glenn and you need to be strong for Richie. Everyone here at PT will join in prayer for him and you, I know they will. I wish I could remove and erase all memory of illness from everyone. Since I can't, I'll pray. And listen. Hang on and hold tight. And please update us of Richie's condition.
    Last edited by Medusa; 03-07-2008 at 07:24 PM.
    Blessings,
    Mary



    "Time and unforeseen occurrence befall us all." Ecclesiastes 9:11

  3. #3
    Join Date
    Jan 2004
    Location
    SE USA
    Posts
    18,443
    He has all the classic symptomes of a heart attack... Is there another heart doctor they could take him to?

    Special Needs Pets just leave bigger imprints on your heart!

  4. #4
    Join Date
    Aug 2004
    Location
    Alberta, Canada
    Posts
    22,005
    Get that boy to someone in Little Rock! Please!

    If your aunt happens to know a really good cardio doc in your town go there. But this is life and death.

    HUGS! I hope he gets good help soon!
    "Do or do not. There is no try." -- Yoda

  5. #5
    Join Date
    Jun 2000
    Location
    Windham, Vermont, USA
    Posts
    40,861
    You and your cousin will be in our prayers.
    I've Been Frosted

  6. #6
    Join Date
    Aug 2006
    Location
    Methuen, MA; USA
    Posts
    17,105
    Prayers for you, your cousin and all your family, from RI.
    .

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