Carole....
Do you have it as well?
I have searched for a support group in my area....Madison, WI being the closest metropolitan area but, no luck! There is a site I have gone to in Milwaukee but, I don't know of any "immediate" or "actual" support groups where I can actually go & talk to other women with it!
It just seems like WI doesn't keep up with this disease thoroughly. I have been to 5 different doctors in my immediate area in the past 3 years & only 1 doctor actually "listened" & tried to understand the disease!

trayi52...
I am so glad that you are painfree!!!!
Yes, I do wish he knew what it was like...to be kicked between the legs
.......he should know how that feels!
I guess my next step will have to be to get my butt in to the doctor's office & drag him in behind me if that's what it takes!!!!!
For now, I'll just keep up with the ibuprofen I suppose!

Thanks to everyone for listening & talking with me!!!!!