I've had it since 2000 along w/arthritis. It flares just as arthritis does, some days worse, some better. I'm going through a particularly bad flare right now. Usually if I have bad fatigue, the pain isn't as bad and vice versa. This time I have both. I tried one med, I can't think of the name of it at the moment, but the side effects were awful, worse than fibro, so I stopped taking it. My dr. prescribed a muscle relaxer which I take at bedtime. It helps me to sleep, which is another problem w/fibro; no quality sleep. I wake up as exhausted as when I went to bed.

Exercise is of key importance. If I sit too long, I corrode so I make sure I get in some exercise every day. Unfortunately, this is all I can offer right now in the way of experience and advice. Just don't give in to it, no matter how tempted you are to just stay in bed or sit all day. Besides, I can't lie down for too long b/c it's painful. I hope this helps a little, Ellie.