Fibromyalgia

[Sowa]

My mom has it too. I think she has a hard time dealing with it and takes a lot of pain meds, and goes to pain clinics. She tries to walk a lot as it's suppose to help but she usually can't until the pain meds kick in some. Even then it's hard but I think she says it helps a lot when she does it everyday. (her 2 dogs motivates her to walk)

[Catty1]

I don't have it but have heard that people who have fibromyagia have bodies that don't process Vitamin D very well. Apparently high than normal doses can help, and one article here says it has to be Vitamin D3.

http://healthandsurvival.com/2007/12/10/72/

http://www.ncbi.nlm.nih.gov/pubmed/16850115

My doc has me on 2000 MG per day.

[pomtzu]

Thanks for the replies.

Carole - I'll PM you tomorrow.

Catty - my body doesn't process anything well.

I have had multiple symptoms for many years, and just recently my primary care doc put them all together. I'm surprised no one came up with this diagnosis sooner, as right now, it's as plain as the nose on my face. But when the orthopedic guy sees one thing, the surgeon sees something else, and the GI specialist sees yet something else, and they all have tunnel vision and are fixed on their own specialty, then I guess it's understandable. Then one doc puts all the pieces together that the specialists have - and there's the answer. At least now I know that it wasn't all my imagination, and it explains some of the issues that nobody had an answer for previously.

[robinh]

My sister tried acupuncture for a while. Said it really helped, but she stopped because I think she likes the meds better. She's a hypochondriac and enjoys being sick.

My SO has scoliosis, stenosis and chronic osteoarthritis. He sees an acupunturist monthly and says it really helps with his pain.

[carole]

Does you sister actually have fibro, because you post is rather offensive to me and other fibro sufferers,and not very helpful or caring for a newly diagnosed person with this illness, i may well be over sensitive but then there is a reason for that,if she actually has fibromyalgia then you should be showing her some empathy,as it is a very horrible condition to live with.

i Just wanted to add if you sister has fibro it may well come across she sounds like a hypochondriac because the condition is well know as the irritable syndrome as it irritates almost everything in the body , i think the difference with a hypochondriac is they go to the doctor a lot and complain, personally you have to drag me to the doctor, i hate going and never go unless it is urgent.

Support and understanding is the most important thing to give someone suffering from this condition.

If i took this post wrong forgive me.

[carole]

BELIEVE me it is not in your imagination, and although it is good to get a correct diagnosis, there is not much out there to help, candace funny you mention Vitamin D, i am on a vitamin D pill once a month, as i have low Vitamin D, but then i am not an outside person, i am fair skinned and i don't want to get skin cancer,i am scottish by birth so not really made for the very harsh NZ sun,we have the worst in the world i think.

Just wanted to add acupuncture is only a temporary fix, and if you can afford to have it like three times a week for the rest of you life, you may well get some relief, as are hot spa baths, and GENTLE massage ,they all help but again you need access to them on a weekly basis and most people cannot afford such a luxury.

[momoffuzzyfaces]

I have firbro as well as advanced arthritis. Yep, guilty of being low on vit D too. When my dr checked my D levels early this, year I was so low I had to take 50,000 iu twice a week for 6 weeks. Now I have to still take 2,000 iu a day.

I won't take the fibro drugs because they are way to new. I don't want on something they will be recalling in a few years telling me I now have horrible things done to my body by it. They wouldn't do anything for my arthritis pain anyway.

I take a prescrip pain pill at night and just a couple of Tylenol during the day. I was on high doses of Ibrophen for years. Now I'm starting to have kidney trouble from that so can't take it any more. Have to watch the Tylenol too because it can damage the liver. Some days I feel like I'm fighting a losing battle while standing in a pool of quicksand.

I used to love hot baths but now my knees are so bad I can't down into the bath tub so it's showers only. The hot water on my fibro areas does feel wonderful though.

Now my arthritis is getting into my upper arms. The pain from that is meeting the fibro pain. But I am determined to keep going. I do need to rest a lot though.