You'd be surprised at how much you know Pom.
Canada and Britain are the two hot spots for MS. I don't think there are too many people who don't have a family member that isn't suffering from ms.
One of my closest friends is totally paralyzed from the head down, fed by tubes and can barely whisper, she's been like this for 7 yrs now. Most of the time she is sleeping but when she's awake she enjoys our company. We've not once heard her say she would rather be dead than living like this. And neither has her husband or daughter ever mentioned this.
There are so many people out there who have ms and all are at different stages.
The drug trials you find ridiculous are just that...ridiculous. We have a large center 8 hours away who conduct trials and this is just not so. It goes to show to what extent the media and gossip have people believing crap like this. A few people that I know took part in the trials, they discussed it in whole with our society and nothing like that takes place...ever...

Everyone would like to see a cure for this disease but so far because of the differences in just about every patient nothing that works for one will work for everyone. But that doesn't mean to say patients should be putting their lives in danger because of some hype.