Fibromyalgia

[carole]

Thanks will go and check it out now, i also belong to another website which gives information on all the latest research about Fibro, it can be very interesting, I used to belong to a Fibromyalgia support group some years back, and for a time it was good, but in the end i found it depressing, the group closed after a while so i guess i was not the only one finding that, it is always great to have someone who understands and one you can share with for sure and thanks Karen i will indeed take up your kind offer, please feel free to do the same with me,we fibromyalgics need to stick together eh?

Ha I went to join up and i think i am already a member because my username was already in use i doubt seriously there would be two with my name especially the NZ at the end lol.

[Daisy and Delilah]

Sorry to bring up this old thread. I have just been diagnosed with fibromyalgia for sure by a rheumatologist. Does anyone take Cymbalta for this or anything else? I would like to hear from those who use it and know about it. Also......has anyone ever heard of Vitamin B-12 injections for this disease? I just heard that there's a new form in a new drug that's a nasal gel. I can't think of the name right now--maybe Nascabol?? Anybody use this?

[Catsnclay]

I too have Fibro + arthritis + hip & spine problems...... no walk in the park, believe me

I take a lot of medication, mostly for chronic pain, but from what I have been told, there is no medication for Fibro.

I do get monthly B-12 shots, at first they worked wonders, now I'm not so sure, but I still get them.

Can you tell us more about this nasal gel????

[Daisy and Delilah]

Catsnclay-you have just about the same things as I do. It sure isn't any fun. I don't know much about the gel. A co-worker told me her dr. is giving it to her to help with energy levels she lacks with fibromyalgia. She said it doesn't do much for the pain but does help her energy which helps her to cope with the effects of the disease. Here is their website www.nascobal.com/ I hope that will come up for you. I just Googled it. From what I hear, there is no medication for FM either. I think it's alot of hit and miss.

Good luck to you.

[Daisy and Delilah]

I just read that Lyrica is now being prescribed for fibromyalgia.

[Catty1]

Here is something from a list I have, developed by some medical and nutritional professionals. It is suggested nutritional support (not cure) for many conditions, and this is the list for Fibromyalgia.

These are be some things that can be brought up discussion with others on any forums you are on, or with Ptrs or whoever.

List first, then explanation:

Fibromyalgia - CN plus Total Control, Herbal Concentrate,
Herbalifeline, Dong Quai, (Nutri 9 & Brazilian Tea may also Help –
Eliminate Aspartame from your diet.)

The above items are Herbalife products, but I will detail them a bit below so you can find something from another source.

CN = Cellular Nutrition - one protein shake a day; soy isolate powder(flavoured) plus whey isolate powder to make it about 30g protein.
Multivitamin with some minerals that you take 3 times a day (body runs 24-7)

2. Total Control - used as a snack control and metabolism booster - contains caffeine-type ingredients(again, non-crash)

3. Herbal Concentrate - called "tea" it contains a green-tea type caffeine that doesn't do the caffeine 'crash

4. Herbalifeline - Deep sea (sardine) fish oil in gel caps - Omega 3. 2 caps 3 x day to start.

5. Dong Quai - A good version of this Chinese herb in tablet form; the "woman's" supplement.

6. Nutri - 9 - Calcium tab with 9 other minerals(make magnesium or Vit D one of them for better absorption)

7. Brazilian Tea - like #3, but contains guarana, a stimulant herb from South America.

8. This one is just from me - is your hemoglobin/iron level good? A pharmacist showed me several types of iron....Ferrous Fumarate is the best absorbed type, he said. Taken with a Vit C tablet (500mg or so) helps even more.

Just for information...check it out with doctor, others, etc.

I HOPE you all feel better soon! HUGS!