Fibromyalgia

[K9karen]

Carole...I've met total strangers, who in conversation (Lord knows how it comes up-I guess people in pain spot people in pain) who say they have fibro and when I tell them I do, they almost cry to find someone who understands it. It's a relief to find a fellow sufferer so whenever you need to chat, email me (in my profile) or PM me, I won't mind. I know girls on Disability with it. It is hard to hold a job with it. I still say that, between 2 ill parents, back problems etc and especially fibro from the stress, caused me to lose my job. I never lost a job in my life but it got so bad I couldn't mentally, physically, emotionally function.

Next time you feel like digging a hole, let me know. I'll dig one too and maybe we can meet half way, across the ocean for some gentle hugs! I'm lucky I have lots of support from the guys but when I have an outbreak, I especially miss my mom and her hugs and sympathy.

[dukedogsmom]

Hey you sufferers. I've looked over some message boards for this and this one looks to be good if you want to join.
http://forums.delphiforums.com/Fibromates

[carole]

Thanks will go and check it out now, i also belong to another website which gives information on all the latest research about Fibro, it can be very interesting, I used to belong to a Fibromyalgia support group some years back, and for a time it was good, but in the end i found it depressing, the group closed after a while so i guess i was not the only one finding that, it is always great to have someone who understands and one you can share with for sure and thanks Karen i will indeed take up your kind offer, please feel free to do the same with me,we fibromyalgics need to stick together eh?

Ha I went to join up and i think i am already a member because my username was already in use i doubt seriously there would be two with my name especially the NZ at the end lol.

[Daisy and Delilah]

Sorry to bring up this old thread. I have just been diagnosed with fibromyalgia for sure by a rheumatologist. Does anyone take Cymbalta for this or anything else? I would like to hear from those who use it and know about it. Also......has anyone ever heard of Vitamin B-12 injections for this disease? I just heard that there's a new form in a new drug that's a nasal gel. I can't think of the name right now--maybe Nascabol?? Anybody use this?

[Catsnclay]

I too have Fibro + arthritis + hip & spine problems...... no walk in the park, believe me

I take a lot of medication, mostly for chronic pain, but from what I have been told, there is no medication for Fibro.

I do get monthly B-12 shots, at first they worked wonders, now I'm not so sure, but I still get them.

Can you tell us more about this nasal gel????

[Daisy and Delilah]

Catsnclay-you have just about the same things as I do. It sure isn't any fun. I don't know much about the gel. A co-worker told me her dr. is giving it to her to help with energy levels she lacks with fibromyalgia. She said it doesn't do much for the pain but does help her energy which helps her to cope with the effects of the disease. Here is their website www.nascobal.com/ I hope that will come up for you. I just Googled it. From what I hear, there is no medication for FM either. I think it's alot of hit and miss.

Good luck to you.

[Daisy and Delilah]

I just read that Lyrica is now being prescribed for fibromyalgia.