"There's no place like home" --
at least you made a little progress in finding out what may be going on. Like you said, just knowing makes it easier to bare. Where we live now there seems to be a very high rate of MS, no one knows why. My one friend has it and said that it's very hard to diagnose because the symptoms can look like so many other things.
Sending you hugs & prayers, and hope you can get some much-needed relief from the pain soon.