Kelly (NoahsMommy) Needs PRAYERS - Hospitalized 11/04/'05

[momoffuzzyfaces]

I sure hope you are feeling better or will be soon Kelly!!!
I can tell you for sure that no one knows what it's like to live in pain every second of your life until they do it!!! I, myself, feel like giving people a swift kick (if I could get my foot up that high) when they act like arthritis is just a minor thing, like a bug bite. I've had both doctors and nurses act that way.
It may be minor for some people, but for others of us, it's a nightmare.

Lots of prayers and (((HUGS))) heading your way!!!

[kimlovescats]

Kelly, I am so sorry to hear that you are still in so much pain. If your GI doctor repeatedly tells you that your pain isn't caused by Crohn's then what the heck IS causing it? Does he have a theory, or is he just tired and giving up for Pete's sake???

(((hugs)))
Kim

[carole]

oh Kelly sweetheart I am so sorry to hear you are in pain again and getting this apalling treatment, what is wrong with these people, why on earth do they become doctors and Nurses if they have no compassion, if only everyone could be a sweet and lovely as you are my dear the world would indeed be a nicer place.

Kelly you DO NOT deserve to be treated this way, and remember it is them who are in the wrong, they need a good kick in the butt IMO.

I so hope you start to feel better soon and that you do not have to put up with this unkindness that is completely uncalled for, Kelly we all care about you very much and you have become like everyone's daughter, friend, sister,so know that our thoughts are always with you dear as are our spirits.

[K9karen]

Gini..thanks for your PM..Hope you got my reply as I thought I may have hit the wrong key. Anyway, please email or PM me after you talk to Kelly.
You know that after caring for 2 chronically ill parents and then my own crap, I'm a radical patient advocate. I hate confrontations, I'm an enabler but when it comes to health and attitude and doctors and insurance etc, I'm the meanest, most arrogant *B* you'll ever meet. You have to put these incompetent people in their place. They went to freaking med school for 12 years to help people (assumingly) and we're suppose to trust them with OUR care. Hell, I'm suing the last nursing home my mom was in because I blame them for her horrendous last hours. If Kelly had cancer, God Forbid, she'd be able to find a specialist in THAT specific area.
And if the stupid pharmacist or clerk gives her an attitude, let her tell them to trade bodies. I used to take 7 pills a day, most narcotic pain killers and I couldn't give a rats butt what they thought, cause I'm a paying customer.
Ugh..I'm on my high horse again, I'm so sorry to rant on and on, but I just can't BELIEVE that poor Kelly is suffering so badly, 24/7 with no medical support.
I'm serious, I'll call my cousin and ask if he knows any body in his area from med school or a conference etc.
I'm on a rampage for her. She deserves a decent life.
I love you Kelly.

[anna_66]

Just wanted to let you know I was thinking about you and hope your feeling better today

[luvofallhorses]

I'm sorry, Kelly. You don't deserve to be treated like that. What an inconsiderate jerk! I hope you are feeling better soon! (((HUGS))))

[ChrisH]

Kelly, prayers and love.

{{hugs}}

[tatsxxx11]

Sending you all my love and keeping you in my thoughts and prayers, dear Kelly. I'm so heartbroken for your suffering, friend. Have to read through all the posts but I know this already, you have had to endure more than your fair share of pain and suffering

Love, Sandra

[NoahsMommy]

You are all so sweet...I originally didn't want to bother you all with this because I know you worry for me and hurt for me when I'm in pain or scared. Thank you so much...your words warm my heart and bring tears to my eyes.

First, Gini...is the mom I would have chosen (I love my own mother of course! But Gini is just an added bonus)! I called her in tears because of how the pharmacist treated me on Sunday - for the second time. I'm usually a strong person, but I'm wearing thin and tearing up a lot quicker now. Gini was right, I'm getting the feeling that because my insurance is now requiring prior-authorizations (required for long term narcotic use), my pharmacists are judging me. I wish they'd LOOK at my other drugs, my diagnoses and the TYPES of specialists I'm seeing before giving me such a hard time. I'm changing pharmacies to a now local, small pharmacy where I got my Fentanyl patches...(stronger narcotic pain patches for chronic pain) and they were as nice as could be! They even gave me a cute sunflower/sparkly pen, to welcome me back to Newbury Park!

I have been refered to a pain specialist and I truly feel validated by this doctor. I had a run-in with who I *think* is the office manager today about getting her to do a pre-authorization after my meanie pharmacy screwed up yet again - but she didn't get to it and I had only 2 pills left. While I see their side of it, I only learned of the mess up (pharmacist on Sunday REFILLED, didn't use a PRE-AUTH code when she refunded my money...so it looked like I picked up my meds on Sunday) this morning at 9:00. I called the office mngr at 10:30 (when I took my lunch) and by 3:30 she hadn't done anything. When I called after work (3:30), I was told she couldn't get to it till tomorrow. When I told the girl that if I don't have my meds, I have to go to the ER and that I respected their time, it was out of the norm for me.

It seems like everywhere I turn, people are messing things up. Ugh.

I ended up paying for my pain meds, yet again.

I have an appointment on 12/28 to see if my pain is a nerve ending issue. I'm going to have 2 seperate nerve blockers done. If they work, my doctor is going to preform a permanent nerve block to the nerves that are causing/triggering my pain. It doesn't mean my pain will be GONE, but if the first nerveblock works...it'll at least help when he does the permanent procedure. That's a good sign.

I have an appointment at 4:15 on Thursday to talk about my meds...what I have aren't working if I'm still ending up in the ER. Gini and I talked about having something on hand that is much stronger than what I have at home only for emergency use so I'm not going to the ER.

As far as a new GI...that'll be interesting. Dr. Daneshgar (my local GI for the past 3-4 years) is basically the BEST in this area. I'm going to look into some more, ask around. I may just stick with my Cedars doc. He thinks my pain is a nerve ending issue as well, so if I end up in the ER again (will go to Cedars), he'll be on the same page. I don't envision any poor treatment there...they are wonderful.

About complaining. I sent Los Robles a 4 page letter, to the head of nursing over a month ago...still no reply! Now, I'm going to send a letter to the hospital director...with a copy of the letter I sent with these new "adventures". I'll never set foot in that hospital again...ever!! I'm appauled at the attitude...you all know me...I'm sweet, nice and annoyingly positive...even when sick!! I talk to my nurses and doctors...I'm smart (I use medical terms, I get to the point - don't waste their time with unneccesary details, etc.), I'm totally patient, I'm usually a happy patient, etc. Regardless if I was mean or nice, there's NO excuse for that treatment. I'm appauled!!!

Thank you all again for your kind words, concern and love.

I wanted to add that while some people don't agree with AMA, with the things I've seen, sometimes its the best and smartest thing to do. These doctors/nurses are idiots...as you can see from my experiences. I've been lucky that usually my GI respects my wishes and will discharge me when I want to go home.

I hope I answered all your questions. If not, let me know.

(((((PT))))))

Love, Kelly

[moosmom]

Kelly,

I'm so sorry for everything you've had to go through, honey. You have been through the ringer MANY times over. You certainly deserve a break and to be happy and healthy. That is certainly not too much to ask.

Before I left Michigan, I had a run in with my former doctor. She was an idiot. She gave me a coupon from the McKesson (they make Paxil CR) for a free 30 day supply of medicine till I could find a doctor in CT to take over. Well, what she didn't tell me was that you're only allowed to use one coupon per YEAR!!!! I had already used a coupon, seeing as I was unemployed and flat broke. This is a medicine that I absolutely have to take, or I'll go into withdrawal. What ended up happening was I had to pay for it $78/30 pills out of my own pocket. The wouldn't make an exception in my case, even though it was the doctor's mistake.

Pharmacists are basically "drug police". They have all sorts of protocol to follow. What really bugs me is when legitimate patients like you, me or anyone else that requires certain narcotics (I occasionally take valium for anxiety attacks) they look at us with suspicion. HELLOOOOOOOO!!!! WE have legit prescriptions from legit doctors. Go after the REAL culprits...people who ARE addicted to prescription drugs that will do anything to get their fix, including forging prescriptions, stealing, lying, etc.

We love you, Kel. Hang in there. You are a very sweet, STRONG person who I truly admire. Don't take $hit from anyone!!!

(((((((((((((((HUGS)))))))))))))))))))))

[Pawsitive Thinking]

Kelly,

I really admire your strength and determination despite all you have to face. Good luck to you sweetheart!