Kelly (NoahsMommy) Needs PRAYERS - Hospitalized 11/04/'05

[Barbara]

Hoping Kelly is better now- and that she'll be able to find better help.

[Randi]

Oh poor Kelly! I hope she'll feel a lot better soon, and stay that way!

Sending hugs and good thoughts.

[Felicia's Mom]

Sending prayers to Kelly.

[NoahsMommy]

Thank you all for your constant care, concern and love for me. I needed it this time.

I'm seeing a new Pain Management doctor and we're tweaking my pain meds to get me on something more constant. I'm currently on 2.25 mcg/h Fentanyl patches, and then I can take 1 norco every 3-4 hours as needed. On Friday, it wasn't enough and my pain got too strong for me to handle on my own.

I had to go to the ER, where basically everyone there was rude and horrible. I just don't understand why they are being so horrible to me. I'm a nice person...I don't get it. I TOLD them NOT to call my GI - he's repeatedly told me this is NOT related to Crohn's. They called him at midnight. When I woke up at 7:30 on Saturday, I felt fine physically, but he was mean to me too!!! He told me "I have bigger and more important things to deal with right now" when I asked if I could just go home. He got mad they called him at midnight, asking me when I was taken back in the ER...if you don't want to be called, maybe you should re-think your career!! Idiot.

I'm horrifed that my doctor was so mean. I send him holiday cards, bake him goodies each time I come in...I'm nice, I do what he wants me to do...and I'm treated like an annoyance.

My nurse was the same nurse my mom complained about during my last hospital admission before my surgery. That nurse KNEW me when she saw me and didn't miss a chance to be a complete witch to me. I can't win. I guess being a patient with severe, relentless pain makes me an annoyance.

I'd NEVER sign myself out against medical advise. I'm not the one that went through 8+ years of school (yet)...I've always respected my doctors...and even my horrid nurses. This was too much. I WAS allowed to go home, like Staci said. My nurse purposely drug her feet, it was obvious, even to my roommate.

I just don't know what I did to deserve such treatment. I'm the one who's life is almost ruined because I'm so ill...how come they're so mean to me?

From now on, I will not set foot inside Los Robles again. If I require emergency services again, I'll be going to Cedars Sinai, where patients are respected.

I did pull my own IV out, but at this point, I can pretty much insert my own IV. I've had so many and know what to do. My friend CiCi is a vet tech (animal nurse) and told me what to do over the phone. I applied pressure, added a bandage and left. My nurse called my cell phone while I was driving home, but I didn't answer. I'm sure she'll just write in my chart what I did and that'll earn me a "caution" or "bites" sticker...

I'm sorry to have worried you all...I didn't mean to. I didn't call my mom because I didn't want her to worry. I know my body and knew that all that happened was the tweaking of my pain meds enabled the pain to get too strong for me. I know I was fine and after the million times I've (and my family/friends) already been through it all, I didn't want to needlessly worry anyone.

Thanks so much for your kindness, guys. You're all my angels and I adore you!

Love, Kelly

[shais_mom]

I'd NEVER sign myself out against medical advise. I'm not the one that went through 8+ years of school (yet)...I've always respected my doctors...and even my horrid nurses.

I apologize for my confusion Kel - we get people that sign out all the time like that - we had a guy Friday nite that was having an acute stroke and signed himself out. I hope that I fixed my mistake in my later post

{{hugs}}

[dukedogsmom]

Kelly, I'm so sorry you're having to go through all this. I would definately be finding a different doctor. That's what I had to do with my female problems. I can't believe the way in which you were treated. You need to document it and write a letter to the higher ups so they will know what is going on at that hospital. This is inexcusable and they shouldn't be treating people like that. No telling how many people have been mistreated.

[K9karen]

His medical license should be revoked. What a jerk. If your pain isn't related to Crohn's, then he should be recommending another specialist. That's what my doctors did. Over the years, I've changed doctors at a drop of a hat until I found ones who really cared that I was stooped over , walking like I was 90, and in pain for 30+ years. They all called me at home when they found out my mom died! They didn't have to do that. I'm so blessed. They all believe that in this day and age, there is no reason a person has to be in agony, and if they are, there's a reason, and let's find it. I'm so angry for you! My mom was in the hospital 9x in one year and we always either had or passed by the same ER nurses and doctors, and they always came in to say hello, sorry you're back etc. When the waiting room was full, we got taken right away. The nursing manager is always around and I know that if the nurses don't make the grade, they're reprimanded, suspended or fired. When my mom, at one time, in ICU, got manical and rude (not like her) and God Bless those nurses who took it in stride and were as sweet as could be. I was embarrassed and apologized, but they said not to worry about it. I don't mean to go on and on, but I can't believe YOU of all people, sweet as you are, could be treated like crap. My theory is "what goes around, comes around". Please please find a new doctor and check the medical board for his credentials and any complaints etc. They should be ashamed of themselves.
Sorry, I'll get off my soap box. But you and I are "old pros" at this stuff. I pray for you every night that you feel better. I hate that you're still suffering so. It breaks my heart. I don't know you that well, and I never met you, but I feel like you're a girlfriend and I care very much about you.

[momoffuzzyfaces]

I sure hope you are feeling better or will be soon Kelly!!!
I can tell you for sure that no one knows what it's like to live in pain every second of your life until they do it!!! I, myself, feel like giving people a swift kick (if I could get my foot up that high) when they act like arthritis is just a minor thing, like a bug bite. I've had both doctors and nurses act that way.
It may be minor for some people, but for others of us, it's a nightmare.

Lots of prayers and (((HUGS))) heading your way!!!

[kimlovescats]

Kelly, I am so sorry to hear that you are still in so much pain. If your GI doctor repeatedly tells you that your pain isn't caused by Crohn's then what the heck IS causing it? Does he have a theory, or is he just tired and giving up for Pete's sake???

(((hugs)))
Kim

[carole]

oh Kelly sweetheart I am so sorry to hear you are in pain again and getting this apalling treatment, what is wrong with these people, why on earth do they become doctors and Nurses if they have no compassion, if only everyone could be a sweet and lovely as you are my dear the world would indeed be a nicer place.

Kelly you DO NOT deserve to be treated this way, and remember it is them who are in the wrong, they need a good kick in the butt IMO.

I so hope you start to feel better soon and that you do not have to put up with this unkindness that is completely uncalled for, Kelly we all care about you very much and you have become like everyone's daughter, friend, sister,so know that our thoughts are always with you dear as are our spirits.

[K9karen]

Gini..thanks for your PM..Hope you got my reply as I thought I may have hit the wrong key. Anyway, please email or PM me after you talk to Kelly.
You know that after caring for 2 chronically ill parents and then my own crap, I'm a radical patient advocate. I hate confrontations, I'm an enabler but when it comes to health and attitude and doctors and insurance etc, I'm the meanest, most arrogant *B* you'll ever meet. You have to put these incompetent people in their place. They went to freaking med school for 12 years to help people (assumingly) and we're suppose to trust them with OUR care. Hell, I'm suing the last nursing home my mom was in because I blame them for her horrendous last hours. If Kelly had cancer, God Forbid, she'd be able to find a specialist in THAT specific area.
And if the stupid pharmacist or clerk gives her an attitude, let her tell them to trade bodies. I used to take 7 pills a day, most narcotic pain killers and I couldn't give a rats butt what they thought, cause I'm a paying customer.
Ugh..I'm on my high horse again, I'm so sorry to rant on and on, but I just can't BELIEVE that poor Kelly is suffering so badly, 24/7 with no medical support.
I'm serious, I'll call my cousin and ask if he knows any body in his area from med school or a conference etc.
I'm on a rampage for her. She deserves a decent life.
I love you Kelly.

[anna_66]

Just wanted to let you know I was thinking about you and hope your feeling better today