I'm so sorry. I've tried to find you a couple of good message boards. Most of them weren't too active. These two appear to be. They're not the same format as a regular forum but both appear to have a lot of activity. I hope you'll feel better soon. My SIL has it also. I hope I've gotten the right ones.
http://members4.boardhost.com/nikkigosling/
http://members4.boardhost.com/CrohnsChat/