Kelly, even if I cannot help you with a letter (I think it is only for US), I would just like to support you a little bit with this message.

I am a researcher and I know the disease quite well for having doing research on it during my PhD. I did not meet patients but I worked in close collaboration with gastroenterologists, and I can (try to) imagine how painful and disabling this disease is.

The American Crohn's and colitis foundation is doing a great job and very good research and it is very good they have the support from many people, patients or not. The same kind of Foundations also exist in several european countries. Research is progressing fast but IBD pathologies are relatively new and still need a lot more research.

Your involvment is fantastic and you look very strong. I'm sure you will get great help from people here.

Hugs,
Sonia