You poor thing! I hope they can find out what's going on. Autoimmune problems are terrible since your body is at war with itself. I know you're sick of taking drugs, but there's this new "nuclear option" for pain that just came out. Also, you might want to check out acupuncture, reiki, etc. Autoimmunes are the ultimate out-of-balance condition, and the Eastern practices are all about restoring balance.

Good luck!