Fibromyalgia

[Daisy and Delilah]

carole; I'm so sorry to hear about all the pain and problems you have with FM. You're so right in saying that no one understands it. I already have my family and friends practically snickering when I mentioned it to them. It's not that they're being hateful but that they just don't know anything about it. I really wish they would take the time to research it like I have.

Good days and bad days is exactly the way it is. I'm having a pretty foggy day today and very low energy. I still try to work parttime but it's so hard. I can't stop thinking back to the way things used to be years ago. As you mentioned, everything is now an effort rather than routine or just for pleasure. It's an ordeal for me to just go grocery shopping some days. I've started buying in bulk(when I can go) to avoid extra trips when I know I may not feel like going. I have already learned to ask people to pick things up for me if they're going to a store. I've always been so independant but not any more.

Have you ever heard of the magnesium injections for this? I would like to find someone that's had these besides my friend that has it.

Best of luck to you. I hope we can find a cure for this one day.

[carole]

I admire anyone who keeps in the workforce, i was not in the workforce when diagnosed, having a pre schooler, i have never re-entered the workforce and honestly i simply could not handle it, i find it enough just doing the housework and being a mother, so if you can hang onto your job, that is fantastic.

Yes well i would love those people who snigger behind your back or to your face to spend a day in our shoes, it is the pitts, being honest here,sometimes i wonder how we all keep going,it hurts so much.

Oneday i sure hope they do come up with a cure or at least something that will help the pain to be managed to a comfortable state.

Fibro is very disabling both emotionally and physically,and you do feel isolated,and depression is very common for anyone who is in constant pain, there are days i just feel like giving up,but i know there will be good days and i just wait for those to come and enjoy them to the fullest,i probably do overdo things when those days are here, but can you blame me lol.,gotta do stuff when the going is good as they say.


I wish you all the best, and yes i know what you are going through my dear,you have all the understanding and empathy right here,I am lucky my husband is reasonably good, and he certainly knows my pain is real,he is the only one who sees it daily, and right now he knows how much i am suffering, I do hope you have someone close and dear to you who can offer you some level of kindness and caring and understanding, but you know only those like ourselves really can understand, it is a very complex illness. More gentle hugs coming your way.

[Daisy and Delilah]

Thanks carole. Gentle hugs to you too

[momoffuzzyfaces]

I am going through a rather nasty flare up at the moment, and it is very painful, my muscle in my left shoulder blade has locked,best way to describe it, i was in horrific pain and could barely move without excruitating pain,but today the pain is more localised in one area, i have yet to know if this is fibro related, i imagine so,or something else,it only happens like this maybe four or five times a year, this time i was out having dinner, which was embarrassing and none too pleasant,had to go home,that was a mission in itself, does anyone else have these terrible painful moments.

I've been dealing with something like this lately too. It feels like a big charlie horse from my right shoulder blade clean through to my front.
The only way I can get relief is to lay down with an ice pack on my shoulder blade and take ibroprofen. My doctor says he's sure it's my fibromyalgia causing it. I can hardly sit up when it's acting like that. Thankfully, the last few days have been lots better.

[carole]

Well you won't believe what eased my pain, it was doing my weights, i decided i was going to do the treadmill, having missed a day already, and that was kinda painful, and i was scared to do my weights, they are only 1.5kg each hand, at first there was intense pain in my left shoulder and then low and behold it was gone, temporarily, but it did not come back with the same intensity,amazing, i think maybe it helped to unlock the muscles there and stretched them out, that is my theory and i am sticking to it lol, today it is just sore all over which is normal for me,but i hit my left shoulder blade on the dormer in the house ,was looking for a leak and i forgot it was there, ouch that really hurt, i think it is worse than the other one now lol, just what i did not need eh? why oh why do we do silly things like that eh?

If anyone has any good ideas or things that help them with their FM they should post it, what works for one does not necessarily work for another ,but anything is worth a try i think.

Here's hoping everyone is having a reasonable day,or by extreme luck a really good one, HUGS and gentle ones to you all.

[momoffuzzyfaces]

I found a good site I think some of you might like to look into. It tells LOTS about fibromyalgia. I hadn't realized my restless legs syndrom could be linked to my fibromyalgia.
It's called:
www.fibrohope.org

[carole]

Thanks for that, i have had this for 12 years but i am still learning new things about my condition every day, it is always good to be properly informed and know what you are dealing with IMO. cheers

[Daisy and Delilah]

I am so glad you posted that link, moff. Thanks The more we can learn, the better off we'll be and we can deal with it easier.

I hope everyone is doing as well as can be expected.

[jackmilliesmom]

I suffer daily but for the pain my Orthopaedic and Rhumetologist prescribed a medication called Arcoxia which has helped with the inflamation and some normal light pain releif such as neurofen.

[Kirsten]

A friend of mine has it, it must very painful.

And a while ago, I was told by a rheumatologist that I'm prone to have it one day...

Kirsten

[momoffuzzyfaces]

I am so glad you posted that link, moff. Thanks The more we can learn, the better off we'll be and we can deal with it easier.

I hope everyone is doing as well as can be expected.

I'm glad I found the link. I hadn't realized that my lack of concentration and other things that were going on could be because of the fibromyalgia!!!

It's nice to know we aren't alone in this.