I would say it's definitely worth it. How will you ever know for sure if you don't get tested?

I think I understand your apprehensions though. Do you think someone might just call it Asperger's or something else just to call it a name and move on? Do you think what you're experiencing might be too hard to diagnose accurately?

I have to say that I often have reservations about having tests for those reasons. If I don't have the test, I remain totally in the dark. With proper and professional testing, there is a chance that you'll learn more about what you're dealing with, one way or another. I hope this makes sense.

Thanks for posting this. I think I know someone that has this. For years, no one has known what's different about her and how to explain it. Reading this, it sounds just like her.