Please Rev up your prayer powers!!!

[dukedogsmom]

If you haven't talked to my vet yet, you want to just send me the letters and I can take them to him? Just pm me and let me know.

[Cataholic]

A little update....ok, a doctor in Cambridge, Massachusetts has expressed a **real**interest in taking on Binx's case, from a research perspective. So, I am getting some pathology slides sent to her, either by locating his old slides, or by scheduling a biospy, which I prefer not to do to Binxie.

I have NOT yet sent a second set of letters out to people's suggested places. I would like to explain that abit, if I might. Binx's condition is incredibly, incredibly rare and severe. I have confirmed this through not only my own vet (who is one of the most learned individuals in animal dentistry), but also from several top periodontists and oral pathologists in this country. While it is **possible** someone that is not a periodontist, oral pathologist, or vet dental specialist might know something, it is pretty dern unlikely. Though a vet school might be the best in this country, unless it has a dental program, it is not going to be of assistance (unless by some fluke chance).

What I am trying to do is concentrate my energies (and resources) on those individuals that have the greatest likelihood of superior knowledge. These 'top' people **should**know other top people (that I might have missed) to forward the information on to them. In fact, several have responded with "I don't know, but Dr. So and So might, can I send it on"?

So, at this point, I am trying to remain focused on the original 150 that I have sent out, and where that might take us. If I have offended anyone, please accept my sincere apologies. It isn't that I don't appreciate the suggestions, or need them, but, right now, I want to stay focused on my 'best shots'.

Sincerely,
Johanna and Binx.

[slick]

Thanks for the update Johanna. I agree with you on focussing issue. Still keeping you and Binx in my prayers that something happens soon.

[Tubby & Peanut's Mom]

Yes, thanks for the uppydate. I really hope the doc from MA can help.

Good luck Binxie boy!

[gini]

Johanna, I clearly understand. Thanks for taking the time to explain your position so clearly and kindly.

I will concentrate on our prayer powers for Binx and for you.

[captain]

Johanna,

Prayers and hugs (as always) for you and the darling Binxy Boy.

I have had a chat to the University of Melbourne Vet Clinic located up the road from me.

They have a Doc. there who is a specialist Dental "something" (long name with a "cian" on the end ).

When you are ready, I will be more than happy to give you their name and address ......

You never know, maybe we Aussies can help you??!!

[Cataholic]

The NIH? The NIH? OMG! One of the doctors I sent the material to contacted an associate of his at the NIH, and then called Dr. Auvil! Can you believe it? This guy at the NIH studies human gingival fibromatosis! He wants some of Binx's blood/tissue to examine for a link between Binx and human gingival fibromatosis!

I have had several, several intersting and informative emails, from these three doctors-non vets, but, very much animal lovers, I can tell.

I am just on cloud nine...against my better judgment. But, who knows? Right? I will keep you all updated. Thanks for being so understanding.

[captain]

Johanna,

We must have cross-posted .............. I am so "tentatively" happy for you.!!!!!

Fingers, paws and toes crossed!

Love
Michelle

[dukedogsmom]

I hope a diagnosis and a cure can be found! I love Binx and haven't even seen him! One day, we must all meet.

[Cinder & Smoke]

Originally posted by Cataholic
... contacted an associate of his at the NIH...

This guy at the NIH studies human gingival fibromatosis!

Johanna ~

"NIH" as in "National Institutes of Health"
(US Dept of Health)??

If so - go to:
http://www.nih.gov/

In the UPPER RIGHT corner of the HIH Home Page is a
Search Block...

Enter in [ "Gingival Hyperplasia" ] USE the Quotes;
and/or [ "gingival fibromatosis" ]
EACH term will give you 30+ HITS on the NIH site.

Happy Reading!!

{{{HUGGS}}} to You and the Binxster!!

[Cataholic]

I checked out the NIH site. Reading the 7th article, under Fibromatosis, WOW! To think that they are researching ways to turn off the gene that produces this condition. WOW! I hope the authors of this study are the same as the doctor Dr. Auvil will be in touch with. How exciting!

Thanks so much Phred!

[Cinder & Smoke]

Originally posted by Cataholic
WOW!
To think that they are researching ways to
turn off the gene that produces this condition.
WOW! How exciting!

There's Always Hope!

And... we got God Werkin on it, too!

[KYS]

I am so glad you are keeping us updated.
I also hope that the authors are the same
ones. So humans and dogs both get
this.
My fingers and toes crossed for Binxie and you.

[popcornbird]

Originally posted by Cataholic
I checked out the NIH site. Reading the 7th article, under Fibromatosis, WOW! To think that they are researching ways to turn off the gene that produces this condition. WOW! I hope the authors of this study are the same as the doctor Dr. Auvil will be in touch with. How exciting!

Thanks so much Phred!

Ohhhhhh I can see a ray of HOPE now! Keeping the prayers up, and hoping they can find a way to help Binx! There's ALWAYS hope! Good luck!

Ps. Does this mean this condition can possibly exist in human beings too?

[gini]

Johanna, what strikes me is that due to your letters and Binx' condition, you will be educating a whole group of veterinarians at the same time. As each confer with each other - perhaps each will learn more about this condition.

I am so happy that you are already getting feedback......and good links here from Phred and others.

Continued prayers for that very special boy and hugs for you.