Prayers for Tommorrow, please?

[NoahsMommy]

Originally posted by gini
The name of the medication is Entocort.

We tried Entocort March - May and it didn't work for me. Entocort is a derivative of prednisone and is a good drug, if it works. I'm on prednisone now and even that isn't working for me. Its in my body because I'm "enjoying" the side effects.

Ugh...this is frustrating.

Thanks for your prayers and support guys. I'll update you after my appointment.

[Poo]

Good luck Kelly, I too hope you can get some answers. Prayers on the way for you.

Nicki x

[gini]

Originally posted by NoahsMommy
We tried Entocort March - May and it didn't work for me. Entocort is a derivative of prednisone and is a good drug, if it works. I'm on prednisone now and even that isn't working for me. Its in my body because I'm "enjoying" the side effects.

Ugh...this is frustrating.

Thanks for your prayers and support guys. I'll update you after my appointment.

Aw, Kelly, darn, darn, darn! Well, there is a lot of research going on so there must be something for you that will work! We will keep our fingers crossed.

[NoahsMommy]

Thanks, Gini.

[ramanth]

Many thoughts and prayers Kelly. *hugs*

[luvofallhorses]

Kelly,

Prayers are on the way. ((((hugs)))))

[NoahsMommy]

Warning...this update may be TMI (too much personal information). Read on if you don't mind.

Well....saw my GI. He thinks my crohn's is in REMISSION!!! If this is remission, GET ME OUT OF IT!!!

He also thinks that the pain meds are causing my pain...by way of constipation.

Pain meds are known to make you constipated AND I'm on a low to no-fiber diet...thus, less potty trips. Regardless, I'm still going at least once or twice daily.

He sent me for an x-ray to "prove" his theory...and lucky me, I hadn't gone yet during the day and the tech says, "Wow, you're full of it! But I bet that's why you're here, huh?" Great!!

So, that leads me where? I can tell he doesn't think this pain is crohn's related. He said something about just being a GI and then said I was in remission in the next sentence. So that's what I'm getting.

We're doing a bunch of bloodwork on Monday (certain lab only takes samples M-Th)...some of which is on my pancreas...a typical test because that's the area in which my pain is in. I know it'll come out fine...they always do.

I'm just frustrated. I don't know what to do.

Ugh....I think I need to sleep on this. I just feel stuck and misunderstood. I am in pain...and its really, really affecting my life. And I don't think he appreciates that.

Something that's odd is that after I "go"...I feel worse. How does that work with his theory??

I'll know more when I talk to him tomorrow....but I know what he'll say. "Don't take pain meds"...yea...and spend my life in the hospital instead??

I only took one pill tonight. And I'm planning on adding fiber tomorrow...maybe it'll work. Although, when I add fiber, the pain is worse. Hmmm....

Gosh, this is so frustrating.

[gini]

Oh, my dear Kelly, bless your heart...................

I just hope that if you haven't already, that you will be sure to tell the Dr. all that you have told us.

Don't worry, we can handle the details..........it helps us understand your pain better.

Let's wait and see what develops.............this is a new approach...........and maybe (hopefully) he is on to something.

But I sure understand your frustration.

xxoo Gini

[petslover]

I am truely sorry that a great person like you has to go through this. I will put you in my thoughts and prayers. I really hope they can make that pain go away. God Bless You!

[NoahsMommy]

Originally posted by gini
I just hope that if you haven't already, that you will be sure to tell the Dr. all that you have told us.

Gini,
I think I'm going to write my doctor a letter tomorrow and fax it. I want to make sure he understand my pain totally.

I've told him all this, but with doctors, they seem to have a "diagnosis" already set in their minds and disclude information unless it goes with that.

Ugh....frustrated...

[luvofallhorses]

Kelly,

You really don't deserve to go through this ((((hugs))))) I hope they get to the bottom of this. Please keep us updated.

[dukedogsmom]

Kelly, I know exactly what you mean. You can tell them something numerous times and they just acknowlege you and go on. I had to switch doctors. I wish you good luck because I know it must not be fun to be in constant pain all the time.

[NoahsMommy]

Thanks for the support guys.

On top of all this, this HORRID prednisone has made me gain 23 pounds!!!! UGH!! 23 pounds in LESS than a month...great!!!

[shais_mom]

until I can get there
sending you love and hugs across the miles....

[gini]

Kelly, probably 23 pounds on you looks great. You would be the only one who would be disgusted. But you are so thin, that a mere 23 pounds would just be put in the right places.

Now if you gave me 23 extra pounds..........just attach a string and I could float over Los Angeles!