I am usually a lurker and not a poster, but I felt I had to respond to this thread. My father has had a carcinoid tumor in his abdomen for a long time. It was discovered, like yours, serendipitously, when he had an MRI for kidney stones. That was about ten years ago and they told him then that he had probably had it for ten or twelve years before that.
He did have surgery about 6 years ago, performed by a carcinoid specialist in New Orleans and has done well since. He takes an injection (I'm sorry I can't tell you what) every three months that helps to keep the carcinoid from growing. Other than that, his only symptoms are related to old age (he's 77 now) and to the fact that they took some 12 feet of his small intestine when they did his surgery.
I'm sorry you have to go through this. I pray to God that you do well through it.
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