Still in pain & no solution...

**Mkitty** · 10-10-2004, 09:14 PM

i hope you get better! i get a pain sometimes in a muscle and it happens usually when i do a certain thing. it doesn't happen very often though

**cloverfdx** · 10-12-2004, 08:58 AM

I just got through reading your other thread and was hoping so much that you would no longer be in pain

. I will be keeping you in my thoughts and prayers that the Doctors can figure out what is wrong.

{Hugs}

**Cataholic** · 10-12-2004, 09:03 AM

Sorry to hear you are in such pain. Could it possibly be your ovaries????? Like a cyst?

**emily_the_spoiled** · 10-12-2004, 11:14 AM

Has your obs/gyn checked for endometrosis? That would cause the kind of pain that you seem to be describing (and it can be removed with surgery).

**ramanth** · 10-12-2004, 12:06 PM

Your Endometriosis is obviously having a bad flare up. DON'T let the doctors convince you it is otherwise. Tell them firmly it is Endo and you need help with the pain management.

Have you joined any Endo user groups?

Sadly there is no cure for Endo...only pain management. But we need to push doctors into finding a cure. Trying to have a baby can't be the only solution...and even that is not 100%.

*HUGS*

My Endo pain moves depending on the day. Some days it's on the left side...sometimes the right...sometimes both. Sometimes higher in my abdomen, and at other times lower.

I truely feel for you.

*HUGS*

**teenster3** · 10-12-2004, 04:20 PM

Yes I found my endo. when I was 21, I'm 29 now.
I just had my 2nd surgery on Sept. 21st & my doctor told me that I should be pain-free for awhile at least. Honestly, I couldn't even describe the pain to you.....it was so severe though. I have to tell you all I feel much better however, when I take a deep breath I still feel the sharp pain. It's really odd but I hope it stays away for awhile. I too feel for anyone that has to go through any sort of pain.
I have been to several "support groups" but I hated it. It just seemed like no one was truly listening like they do here! For me, most of them seemed very judgemental as well. Like, well if you do this then this is what will happen, etc. etc. It's hard to explain, it's like if you've never been in the situation how do you know type of thing. Some people are VERY supportive while others make you feel terrible about youself. This is just what I have experienced.
I have other issues that I am trying to work through as well. I'm sure just like everyone in the world does only, sometimes you just need someone TO LISTEN, NOT JUDGE! Do you know what I mean?

**sirrahbed** · 10-12-2004, 06:51 PM

Oh Tina - I just peeked into General and am so sorry to read that you are still having this pain! I DO understand some of your frustration since my battle is against migraines. I also have endometriosis but it is never so severe as what you describe. The migraines sometimes make me feel as if I am going crazy and sometimes I have had doctors who think I am just trying to get drugs

I am 50 and they started at age 13 or so - went away only with pregancies and nursing my babies so I know that they are aggravated by hormones and am just wishing that menopause would hurry up and possibly take them away. Sometimes, I get strange migraine symtoms like strokes with numbness and slurred speech and wonder if I should go to ER or not - but like you - afraid of what type of caregiver I will come in contact with. Thankfully, I know have a Neurologist whose wife suffers migraine and carry a "doctor's note" with me to the ER with instructions that state I am a long term migraineur, that I may present with stroke-like symtoms and not to give me the typical migraine medications, and to please quickly administer narcotics because I am NOT a drug seeker. I wonder if you could approach your doctor with a similar request?? Surely you need some *hope of pain relief* for those times when the pain is very severe?? If the gyno/surgeon does not understand the sporadic nature and the changes associated with endometriosis - the way the pain can change and shift - perhaps you ned a doctor who understands it better - a woman perhaps? Just a thought.
Again, I am very sorry that you are still suffering. ((((Tina))))

**sammy101** · 10-12-2004, 07:15 PM

How are you feeling today??

**teenster3** · 10-13-2004, 09:27 AM

I've been feeling a lot better!
I still have the pain on my right side though. It comes & goes either when I take a deep breath or move around wrong.
I'm definitely not going back to my doctor for awhile. I just received the bill for my surgery that I just had.....AGH

I don't know what makes a person sicker.....getting sick or receiving their bill for it!