Oh Tina - I just peeked into General and am so sorry to read that you are still having this pain! I DO understand some of your frustration since my battle is against migraines. I also have endometriosis but it is never so severe as what you describe. The migraines sometimes make me feel as if I am going crazy and sometimes I have had doctors who think I am just trying to get drugs I am 50 and they started at age 13 or so - went away only with pregancies and nursing my babies so I know that they are aggravated by hormones and am just wishing that menopause would hurry up and possibly take them away. Sometimes, I get strange migraine symtoms like strokes with numbness and slurred speech and wonder if I should go to ER or not - but like you - afraid of what type of caregiver I will come in contact with. Thankfully, I know have a Neurologist whose wife suffers migraine and carry a "doctor's note" with me to the ER with instructions that state I am a long term migraineur, that I may present with stroke-like symtoms and not to give me the typical migraine medications, and to please quickly administer narcotics because I am NOT a drug seeker. I wonder if you could approach your doctor with a similar request?? Surely you need some *hope of pain relief* for those times when the pain is very severe?? If the gyno/surgeon does not understand the sporadic nature and the changes associated with endometriosis - the way the pain can change and shift - perhaps you ned a doctor who understands it better - a woman perhaps? Just a thought.
Again, I am very sorry that you are still suffering. ((((Tina))))