Johanna,
Could you provide a pretty detailed description of what your vets are describing? That would give me something to share with my vet, who is considered an expert in many surgical procedures, and if he doesn't know, he might know someone who does. Either email me or send me a PM, or post it here. Maybe even a sample of the letter you are sending out would help. We'll be seeing him either later this week or next week and I would be glad to get him involved.
Logan