Quote Originally Posted by Karen View Post
Keep a folder of all your notes, and maybe after all this is over and you're feeling better, you could write an article or book that would help others from going through the same thing!
That's a good idea. I want to start a patient advocate group. I think patients for all critical diseases need advocates.

I'm tempted to make a formal complaint to what ever advisory board for medical personnel when I have more information and this is all over.