I'm really sorry, Pat, that you are this stage of Sydney's life. I've been through this several times and know that sinking feeling when there is absolutely nothing more you can do except be there and offer supportive care. I suppose you have checked to make sure he isn't anemic? Does he have mouth sores? I hate it when they develop those. Yes, treasure each moment. My Sam has been in CRF for nearly three years and I've often given up hours when I should have been doing housework on weekends, or getting to sleep on weekdays, because she is under my knees under the blankets enjoying a massage from me and I want every one of those times to remember.