Quote Originally Posted by pomtzu View Post
That's a tough one Kirsten, and as a sufferer of IBS, I probably should say that. However, I think it would be my brittle bones, as I am always in fear of yet another fracture as I have had several already - that in addition to my crumbling spine! I have been undergoing Boniva infusion every 3 months for the past 2 years to strengthen my bones, but it doesn't appear to be helping. I just had another bone density scan yesterday, and my doc called me this morning with the results - it has gotten worse and not better. I have an appointment with him in a couple of weeks, and he will discuss changing to a different med for the infusion.
I'm sorry to hear that your bone density is getting worse! I understand that you would want this to go away. My spine is also causing many problems, and I can take no meds because that makes the nausea even worse. My bowels are sooo messed up! At least I got my disability pension now.


Quote Originally Posted by pomtzu View Post
Someone suggested wrapping me in bubble wrap for protection! Another "dear friend" - yes, you know who you are - said that when I die my family could sell me for scrap metal with all the rods and plates and screws that I have in my body!
Wow!! Yes, I know what kind of advice you'll get from "good friends". Like today, when I was told to do all the things I like, regardless of the nausea and the other health problems. I can tell people a hundred times that this is something I've tried for many years, and that it made things even worse because it burned me out, and led to even more frustration because you realize you cannot make it, and on the top of it, you're getting on other peoples' nerves when you cannot keep up with them. My doctor told me now the best way would probably be to accept my limits, and make the most of what is left. But that's probably hard to understand for some people!!