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Thread: Anyone dealing with Parkinson's?

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  1. #1
    Join Date
    Feb 2004
    Location
    Concordia Lutheran Home in Cabot
    Posts
    7,815
    Catty1, I'm dealing with an offshoot of Parkinson's called Essensial Tremors. I don't have tremors all of the time, however when I have to hold anything in my hands (like eating utensils or a pen or a pencil) my hands shake and tremble badly and I can't sign my name very well any more and I have to drink most drinks with a straw. From the information so far, this could progress to affect my voice and my neck muscles. So far, it's something to put up with, and I hope it it dosen't get serious.

  2. #2
    Join Date
    Aug 2006
    Location
    Methuen, MA; USA
    Posts
    17,105
    Candace, I 'm sorry your mom has been diagnosed w/ Parkinson's ; but HAVING the diagnosis is a huge step in the right direction.

    You may want to check out a forum on Parkinson's. I learned a lot from one when my Dad was diagnosed w/ diabetes. All sorts of medical coverage kicked in, for things like having his toe nails clipped every 9 weeks and Medicare pays for it 100%. The toenails won't be the case for Parkingson's, but you never know what may services may now be available for your mom.
    .

  3. #3
    Join Date
    Jun 2000
    Location
    Windham, Vermont, USA
    Posts
    40,861
    My former pastor has Parkinson's, has had it for years now. He initially retired because of the combination of Parkinson's and crippling Clinicla Depression, as well as I think myesthenia gravis. He is one Parkinsons medications and they have done wonders for him, when he retired he was shaking very badly, and walked with difficulty, yet a couple years later was able to participate in the baptism of his baby grandchildren, even able to hold the tiny babies (twins who were premature, so tinier than normal), and do the actual baptising. The twins will turn 6 next month, and he's still able to walk and do more than he was 12 years ago, when he was first diagnosed.

    I know I sent some materials to DavidP from him, David, do you still have them? Were they helpful?
    I've Been Frosted

  4. #4
    Join Date
    Feb 2004
    Location
    Concordia Lutheran Home in Cabot
    Posts
    7,815
    Quote Originally Posted by Karen View Post
    My former pastor has Parkinson's, has had it for years now. He initially retired because of the combination of Parkinson's and crippling Clinicla Depression, as well as I think myesthenia gravis. He is one Parkinsons medications and they have done wonders for him, when he retired he was shaking very badly, and walked with difficulty, yet a couple years later was able to participate in the baptism of his baby grandchildren, even able to hold the tiny babies (twins who were premature, so tinier than normal), and do the actual baptising. The twins will turn 6 next month, and he's still able to walk and do more than he was 12 years ago, when he was first diagnosed.

    I know I sent some materials to DavidP from him, David, do you still have them? Were they helpful?
    Karen, I know I read them, but I probably lost track of them meanwhile. Karen, maybe you can send them again?

  5. #5
    Join Date
    Mar 2006
    Location
    Ann Arbor, Michigan, USA
    Posts
    20,177
    Candace, I don't know anyone dealing with it, so I have no informational feedback for you, but I wish your mother and you both well with it. Hugs and prayers for you both. God bless.

    I meant," said Ipslore bitterly, "what is there in this world that truly makes living worthwhile?"
    Death thought about it.
    CATS, he said eventually. CATS ARE NICE.

    -- Terry Pratchett (1948—2015), Sourcery

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