Kirsten, misdiagnosis is unfortunately common and very tough to deal with. I had psoriatic arthritis for 7 years before it was diagnosed and had gotten to the point where I could barely walk. I sat in my office and had coworkers make trips for me to do EVERYTHING. If they had issues with it, I fortunately didn't know. All my relationships suffered; some irreparably due to the fact it was very tough to believe me when I couldn't get diagnosed properly, and doctors thought it was at least mostly in my head. It was not.
It's up to you to find the right medical team to get your life back. That's why I said what I did at the beginning of this. You are the only one who will fight until you find the right medical professional who will fight with you. Believe me, I know. My brother has the same disease I do, and he's still trying to find those people; he's almost crippled. I firmly believe we all have it in us to get our lives back in these situations; the solution is out there and you will get your life back. FIGHT FOR IT!!
You are welcome to PM me or email me at [email protected] - I can be a really good shoulder and cheerleader, but I'll also work to motivate, because that's what will make the difference. Whatever you decide I wish you luck.
Maggie
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