Does Anyone Have Peripheral Neuropathy?

[caseysmom]

Notriptlin (sp) was used long ago for depression and as a side effect it helps with nerve pain, he doesn't seem to have any side effects from it at all.

[slick]

I'm here but typing from work so I can't give you much information.

I won't be on PT again until probably next week so Daisy (or anyone for that matter), please email me through PT and I'll try to get back to you this weekend. Saturday I'm at a wedding and Sunday is Mother's Day but should have some computer time on Sunday evening....hopefully. Sorry. Yes, I still have it bad.

[Daisy and Delilah]

Thanks alot Pinot's Mom. I may need to vent.

I also take Cymbalta for nerve pain in addition to the Neurontin. It doesn't help much but I take it anyway. I can really see why an anti depressant would be given to people with this illness. After all the pain, you get sorta depressed. caseysmom: I'm thrilled to hear your husband is getting alot of relief from that medication. It makes me happy to know that anyone is getting relief. Does his pain get worse at night?

[pomtzu]

Terry - you said the doctors don't know what caused this for you? You have arthritis, don't you, and you had that knee replacement. Has it gotten worse since your knee surgery? That, plus the arthritis could be a contributing factor.

[Daisy and Delilah]

Yes, Ellie. I have severe osteoarthritis and I've had 5 surgeries on the same knee. That's what I believe to be what's making it worse. It started after the first surgery and has gotten progressively worse.

I forgot to mention that the physiatrist Im currently seeing has mentioned I might have a trapped nerve in that knee. I have neuropathy in both feet and legs though. The left leg has other problems and the prosthesis doesn't help the situation. The neuropathy seems to be as bad in the opposite side of the replacement but it's hard to say. Does that make sense? The nerve pain sometimes appears to just be all over the place.

I also forgot to ask , how many people that have it have done the nerve conduction testing and to what degree? I hear there are simple tests and other muscular tests with needles. I had the regular nerve conduction tests twice and they found enough evidence so that I didn't need the other tests.

Slick, I'll PM you.

[Craftlady]

My mom has neuropathy in both legs/feet due to diabetes. The last several years it's gotten so bad that she uses her scooter most of the time. She can still walk but it's very painful. No medications to date have relieved the pain.

[Grace]

Notriptlin (sp) was used long ago for depression and as a side effect it helps with nerve pain, he doesn't seem to have any side effects from it at all.

Notriptylin is one of the tricyclic antidepressants. These drugs are also prescribed for relief of certain types of pain. The side effects can be many and vary wildly.

I took Elavil (amitriptyline) many years ago for chronic regional pain syndrome. It did reduce the pain about 50% - BUT it caused me to have psychedelic dreams which progressed to night terrors. I decided I would rather live with the pain. Fortunately, mine is very sporadic.

[Daisy and Delilah]

I took Elavil (amitriptyline) many years ago for chronic regional pain syndrome. It did reduce the pain about 50% - BUT it caused me to have psychedelic dreams which progressed to night terrors. I decided I would rather live with the pain. Fortunately, mine is very sporadic.

I also took Elavil. It was one of the worst drugs I've ever been prescribed. I had terrible dreams and constant drowsiness. I could never wake up. I always had a hangover.

[Medusa]

I also took Elavil. It was one of the worst drugs I've ever been prescribed. I had terrible dreams and constant drowsiness. I could never wake up. I always had a hangover.

I completely forgot about Elavil. It was prescribed for me also but I gained weight and I cried all the time, so I discontinued it. Sometimes I think that the doctors don't even know if a drug will help or not; makes me feel like a guinea pig. I was also prescribed Cymbalta for fibromyalgia pain. That's the worst drug I've ever taken. I thought I would go insane.

[Daisy and Delilah]

I completely forgot about Elavil. It was prescribed for me also but I gained weight and I cried all the time, so I discontinued it. Sometimes I think that the doctors don't even know if a drug will help or not; makes me feel like a guinea pig. I was also prescribed Cymbalta for fibromyalgia pain. That's the worst drug I've ever taken. I thought I would go insane.

I've heard alot of horror stories about Cymbalta too. Luckily, I can only take 30 mg. a day. I hear the withdrawals from large doses are a nightmare. Actually, that's all I've heard about withdrawals from Neurontin and Lyrica too. The doctors prescribe the drugs and we have to deal with all the consequences. What's wrong with this picture?

[Medusa]

I've heard alot of horror stories about Cymbalta too. Luckily, I can only take 30 mg. a day. I hear the withdrawals from large doses are a nightmare. Actually, that's all I've heard about withdrawals from Neurontin and Lyrica too. The doctors prescribe the drugs and we have to deal with all the consequences. What's wrong with this picture?

I was only on 30 mg. a day of Cymbalta, too. The worst part is that it did help w/the fibromyalgia pain but I gained weight at an alarming rate. Still, I was willing to endure the weight gain as long as it helped w/the pain but after a few weeks, bad stomach cramps started, so bad, in fact, that I was doubled over and had to lie down for several hours. Hours. How do you do that when you have to work? When I called my dr's. office, I was told to stop taking it and I asked if I should wean myself off and the answer was "No, just stop". I did and that's the horror story. So if you ever do decide to stop taking it, no matter what anyone tells you, wean yourself off. Otherwise, you may get the bad side effects that I got: hundreds of brain zaps a day, nightmares, etc. I've heard that other people do well on it but I often wonder if it still works for them.

[Daisy and Delilah]

That's horrible, Mary. Thanks for telling me. I didn't think it would be hard to get off 30 mg. That is some great information for me and everybody else to know. Yikes!!