Thankfully, I was first diagnosed 30+ years ago by a young rheumatologist who believed in it and was fascinated by it. It is one of the hardest ailments to diagnose. Blood work may show "sed" levels up, but mostly that's for arthrisits (I also have OA)Originally Posted by Daisy and Delilah
I started with "Elavil", like a sleeping pill but I was too groggy and couldn't wait for 2 weeks for my body to adjust. The severe pain causes restless sleep, so of course you wake up feeling worse, and fatigued.
Celebrex, Bextra, Vioxx, all the good stuff, taken off the market helped with my bursitis, but barely, Cortisone shots in my hips, shoulders help a bit.
There are pressure points that doctors use to diagnose..chest (I sometimes get lumps), inside the elbows, wrists, ankles, shoulder blades. Moist heat helps as well as gentle physical therapy. But sometimes you feel so bad, you don't even want to go to therapy! One orthopedic sarcastically told me I had the "yuppy disease". He also misdiagnosed my spine/neck problems, caused worse damage with wrong PT so I dumped him like a hot potato. See ya, bye bye, stupid clod.
My fibro seems to worsen with stress (Zoloft not helping-wish there was a pill that erases bad memories) and when the seasons change, especially the fall. Honestly, since my spine has just started to bother me again (where I had surgery) I do take pain killers at night before bed.
Not only that, I was feeling much better with my life in all aspects until my wrist accident. AND I have TMJ so bad I take
muscle relaxers at night.
Not to worry though. I guess I sound like a sicko. I have a lot to deal with, but we all do. I have great friends (you guys) girlfriends of 50 years, John and my Logabeanie. I'll feel better, but it just seems like it takes forever!
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