Quote Originally Posted by Cataholic
Lut- Sam will wear a custom made pressure suit for at least 6 months, up to 2 years, and it will cover her arms, body and thighs.
Oh Sammy, you look so wonderful! I, too, am experiencing major LES while jumping up and down with joy at your progress.

Jo, I guess I missed something, but just what is this "pressure suit" for? It doesn't look like she has anything special on in any of the pics, so will it be something that she wears under her regular clothes? Also, what is the tube in her nose for? Just curious because it's in some pics and not others and more importantly, how in the world do you get such a youngster to not pull that out?!!? Sorry for all the questions and if I missed some of the explanations earlier in this thread....