Yes, I have. People make assumptions all of the time. I have a few non-obvious ones I was born with and one obvious one. My knees are slightly double jointed, meaning the knees can wobble around at times and I can fall. People look at me like I'm nuts. No, I'm just careful these days as I am tired of falling down. The ligaments are loose too, so that makes it fun.

You need a checkup and changing doctors to get a second or third opinion is a good idea. Doctors are people, too, and can be as close-minded as other people.

I will say that activity that is not too strenuous for you is probably better for you than laying around. Just don't overdo it.

And double check the name.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002534/

Let us know if you get a second opinion.